Search results for query: *

I was in hospital yesterday having my monthly infliximab infusion for ankylosing spondylitis. The young woman in the chair across from me was receiving the same thing for her Crohns. Her mom was with her as well. As a result I assumed she must be in her teens. Always a mistake. After...

A question about the next neurology appointment I essentially have three options 1) NCS/EMG at my current hospital through my Neuromuscular specialist 2) NCS/EMG with consult with the first Neurologist to give me an NCS and Sympathetic Skin Response test 3) Do nothing My recent appointment...

Right, so I can swing a golf club after a fashion on the driving range but I can no longer put on socks, leggings or tights without a Herculean effort. Whatever's happening with me is confusing, confounding and continuous. The same is becoming true of bottle lids. Not every bottle, but enough...

My PT and I thought it was an inflamed tendon on the palm of my left hand. Not sore, but protruding noticeably at the base of the thumb. I only mentioned it in passing at the end of one of my regular rheumatology appointments, more as a curiosity than anything. She took a look at it, poked a...

I figure as long as I'm still posting here, I should also continue to share my experience and process. I'm thankfully through most of the concern I felt when AHCD was first mentioned, thanks to this group and my health team. I just want to handle things moving forward as matter-of-factly as...

Miraculously my EMG has been pulled forward to tomorrow and the spinal MRI is still on for the day after. I've normally used visualisation to keep myself occupied during MRIs. Play a round of golf in my head. Stuff like that. But this is going to be a full hour or more in the machine so I've...

My new Neurologist noted AHCD as the only differential on the referral to a neuromuscular specialist for the EMG. Correct me if I'm wrong, but Anterior Horn Cell Disease is the parent for the MNDs? Not surprisingly after an exam, he's also confirmed the atrophy and weakness in both hands along...

This feels so shallow knowing that most of you have already lost significant use of your hands but it's the one of the few things so far in the last year of medical issues that pulls me up. It hit me yesterday reviewing a report for Salary Continuance (private disability insurance) from my...

Let's see if I got this right. Muscle wasting, or atrophy in ALS is the result of "Disuse." Disuse comes about from paralysis of a muscle or muscle group through denervation. Early awareness of denervation is as frank weakness, loss of function, and is clinically observable. EMGs can...

I wanted to give a short update from my first thread and possibly get some additional insight. As way of background, I have a confirmed Dx of Ankylosing Spondylitis and a working Dx of Rheumatoid Arthritis. I am under active care of a GP and Rheumatologist and am being treated with...