Recent content by Quinny

As I was looking through our family photos of these last two years since my husband's diagnosis, I was stunned, actually, by the volume of happy events, milestones and adventures that have taken place in this period of time. One daughter's high school graduation, one daughter's college...

I admire your positive attitude and outside-the-box thinking! We're beach people, and I love your image of toe-writing in the sand. I'll be sure to share it with my husband.

Welcome, so sorry you have to be here. My husband was diagnosed 18 months ago, and there are still many people we have not told. His progression has been slow. It has not gotten any easier for me. In some ways, it has gotten harder because we are now past the stage of hoping the diagnosis could...

Thanks for your reply. We haven't met anyone with ALS in ME yet, so it feels good to connect. M went to Lahey twice in Nov and saw Royden Jones. He was impressed, and will continue to go there. Dr. Jones ordered further tests, since M's progression is not typical. No results yet. Re...

Hi Sue, I am also from Maine. My husband was diagnosed in Feb 10. Has had symptoms since Dec 08. I wanted to ask whether you had connected with the ALS foundation support groups in Maine or found any kinds of helpful local support? Thanks so much for any support you can offer. I am so sorry for...

Thanks for your thoughtful reply. I would never try to change him! We would not have been together these 30 years if I were not the accepting type. It's how he lives and I accept that, and love that aspect of him. And he has taken me on many adventures which I love him for, because I know I...

These are really encouraging posts, thank you! My husband has had symptoms since Dec 08, but a very slow progression; currently only his left hand and arm are affected. Interestingly, he too has had two autoimmune disorders (for more than 10 years) and some things we have read do link autoimmune...

Beautiful small town in midcoast Maine!

My husband has been active and athetic all his life. Sports in high school, surfing, snowboarding, hockey and working out regularly as an adult. The harder he pushed himself, the better he felt. He was diagnosed with ALS in February '10. Mild symptoms had been present for about a year. We didn't...

I am glad to find this thread. My husband was diagnosed in February 10. Mild symptoms had been present for about a year. We didn't want to believe the diagnosis at first (of course) and because of his very slow progression, he had held on to the hope that it was a mis-diagnosis until very...

I believe there can be dignity, grace and courage in the act of euthanasia or suicide under certain circumstances. I also believe these acts can be carried out in a spiritual manner, and that the person(s) involved deserve our love and compassion on their journey.

My husband was diagnosed last January and we had a similar quandary. Kids are 18 and 21, away at college. We told them when they were home over the summer because it became necessary when the older one noticed Dad's "clumsiness", and we were worried that if we waited until they were away again...

My 52 year old husband was diagnosed in February. We held out some hope (maybe denial) until June when follow-up EMG confirmed. We were on the roller coaster of emotions by ourselves together for quite a while, not wanting to tell our kids over the summer. There were lots of happy family...