Recent content by mkboreson

  1. M

    NurOwn

    Hello all! Greg it partially correct. My husband is enrolled in a similar stem cell trial that is running tandem/just behind the Brainstorm trial at Mayo in MN. We actually moved out to MN for 10 weeks last year, with our 3 young children to make sure he could be in this trial. Last...
  2. M

    what to think about this...

    Nikki, I found this. It mentions a 28 day trial with escalating doses in people with FALS and SALS. Kelli Copper to the Rescue in ALS Mice | ALZFORUM
  3. M

    CBD, THC, etc Dosage

    Greg, How do you feel you are doing? Michael has been on the oil and a pill, made by a friend of ours, for almost 4 months. I believe it has virtually stopped his progression.
  4. M

    Thoughts?

    Anyone else see this? Transforming Glial Cells into Neurons | Neuroscience News
  5. M

    Dormant viruses triggering SALS?

    I was just about to post this. So my question is, will a neuro prescribe the HIV drug and see what it does, or no? I;m just curious! Thanks for the info, as always, Nikki!
  6. M

    Alternative Methods

    Music, are you feeling any better? Any differences? Michael is accepted into a stem cell trial and we are waiting until after he receives his to start.
  7. M

    Has anyone else seen this?

    Endothelin 1 Levels Found to be Elevated in ALS Patients: Possible Treatment Avenue ALS News Today Interesting, for sure..... Thanks!
  8. M

    Alternative Methods

    Music - Did he ever get back to you?
  9. M

    Interesting?

    Anyone see this? I don't know if it is the same thing from John's Hopkins or if it is old news. TIA! Researchers home in on biological cause of ALS
  10. M

    Alternative Methods

    Music, this guy is documenting his results with it. It is interesting to watch. He never flat out says Lunasin, but he is in one of my facebook support groups and he has confirmed it is Lunasin there. Just to keep you positive. https://www.youtube.com/channel/UCfawMSJWTpKxJJGE2cv973g Day 19 is...
  11. M

    Alternative Methods

    We just sprung for some Lunasin, via Reliv. Here is hoping it works. We have also been seeing a chiropractic neurologist and he is seeing some improvement from that. He walked all the way up the stairs by himself yesterday, without holding on to the railing at all! Still trying to remain hopeful...
  12. M

    ALS Reversals

    What type of lunasin are you all taking? Is it the 50 or the 100? I want to get some for hubby. Also, anyone ever checked into this? Melatonin is Neuroprotective in ALS Mice | MDA/ALS Newsmagazine
  13. M

    Any insight appreciated....

    Thanks, Janelle.... I think the less stress for him, the better right now.... Green Queen, that is the thing. There are still things they can do. They haven't done a LP and/or muscle biopsy. His liver enzymes and ck levels are fine and they haven't run an ANA test. I am so frustrated because I...
  14. M

    Any insight appreciated....

    Thanks, Janelle.... I'm just so confused. The EMG didn't meet the criteria, so why won't they look at other things? I'm looking forward to this summer. He is most likely going to take the disability so that he can spend as much time as possible with our babies. Our oldest will be in kindergarten...
  15. M

    Any insight appreciated....

    Hi Andrea, Doing ok. The appointment was emotional and frustrating. I kept asking about other things and she just kept writing me off. I am just pretty lost and angry right now. I really want to know WHY it can't be CIDP, MMN, IBM, PLS, etc. I know this is part of my grieving process, but the...
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