Recent content by Marv

This is my send to FDA FDA Health and Human Services. I am a ALS Victim, legs gone, arms use 20%, voice and swallowing 50%, trunk 20% and need to be cared for 90% of the time. In 1996 ALS Victims where offered a drug solution to there problem called Rilutek. Take 1. morning and 1. at night and...

I am a Canadian ALS victim reading as much as possible on Genervon and GM 604. Questions; Why would the system allow Genervon to give false hope? Facts are facts. Why would the ALS Assosiation not be involved with this drug? They should be the voice of ALS all across USA and...

I have had ALS symtoms since 2011 and was told it was ALS 2012. AS of Easter 2014 I am in a wheelchair and now my arms are getting very weak. I have learned a lot about life and living. I have spent many a hour on ALS Trials and Research. I have many questions but find very few answers. For eg...