Recent content by lynneb

  1. L

    Ear issues

    I'm bulbar onset and developed autophony/PET after losing ten pounds quickly. Sounds are amplified and I can hear my own breathing and occasionally my heartbeat. Other people with it may experience slightly different symptoms.
  2. L

    Several have told me you are the respiratory guru :-) I'm having difficulty adjusting to my...

    Several have told me you are the respiratory guru :-) I'm having difficulty adjusting to my bipap. I'm 66 yr old with bulbar onset ALS. My speech began to slur in April 2014. In July 2015 slurring was worse and some swallowing issues - received a PLS diagnosis. In January the diagnosis changed...
  3. L

    Are you on Facebook? I belong to one PLS group, the HSP/PLS group and one for research on...

    Are you on Facebook? I belong to one PLS group, the HSP/PLS group and one for research on ALS/PLS/HSP (it gives me the most hope!) That's where I've found the other PLS folks in north Georgia. Also, I belong to the Georgia SPG group and have met with them once. There's a new guy in Roswell...
  4. L

    I was diagnosed with PLS in July 2015 at the Emory ALS Clinic. I stumbled upon one of your...

    I was diagnosed with PLS in July 2015 at the Emory ALS Clinic. I stumbled upon one of your posts and saw Jackson Ga. I live in Buford. I hope you've been able to find another doctor. My experience with Emory has been similar to yours.
  5. L

    NanJay - I spend most of my time on the Facebook pages but just saw one of your posts. I live...

    NanJay - I spend most of my time on the Facebook pages but just saw one of your posts. I live in Buford GA and was diagnosed with PLS last July at Emory. I've met four others in the north GA area with PLS and have heard of two more. Just thought I would reach out :-)
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