Recent content by Faith_7

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    Thank you for your message. I'm currently experiencing symptoms that I believe fit bulbar onset...

    Thank you for your message. I'm currently experiencing symptoms that I believe fit bulbar onset or some type of neurological disease. I have seen 2 neuros in the last 10months (my last appointment was in Jan of this year). I was told to wait & see if anything progresses. I've had 1 EMG & of...
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    It's been 8months...

    Can someone explain what "shakiness" of arm when lifting a kettle or holding a plate means? Is this a symptom of weakness, that means that my limbs are getting weak?
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    It's been 8months...

    bluedog, thank you for your post & advice. My last clinical exam was in Jan of this year, & the neuro letter to my GP didn't state any hyper reflexes or issue with gait etc. She mentioned to put me on some meds used for Parkinson's that would help dry out the excess salivation that I've been...
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    It's been 8months...

    Grateful, I'm not trying to imbed in my mind that I have this disease. Honestly, since my last neuro appt, I've been trying to ignore my symptoms, avoiding this forum & have tried to get on with my life. My symptoms aren't getting any better, & apart from stress...there is something...
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    It's been 8months...

    Hi all, The earliest I can see a neurologist is 3mths! I thought that in the mean time, I should jot down a few things to prepare myself for the consult. Just wanted to ask how to explain to the neuro a few of my symptoms, such as...when trying to do excersise & I use my arms, the left one...
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    It's been 8months...

    Yes, you are all right. Thank you for the heart felt advise. There is no point me going on and on about what you all think it may be, the doctors know best and I must listen to their advise. I guess, I'm in denial and want to hear that "I don't have anything". vickim - Bless you and thank...
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    It's been 8months...

    Thank you for your responses. Yes, I did tell the neuro that I thought I felt I was showing signs of a motor neuron problem. I've seen a total of 2 neuro's since last year Sept 2012, all with them scratching their heads. Does anyone think that all these symptoms could be something other...
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    It's been 8months...

    Hi there, I started a thread about what I was experiencing in Jan of this year, however that thread was closed for some reason. To re-cap, I'm a 29yr old female who started noticing symptoms from Sep 2012. My left arm still feels weak (it shakes when lifting a kettle or a plate). My balance...
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    Hi Kiara! I was suppose to have a repeat of my EMG last week with a new neurologist however she...

    Hi Kiara! I was suppose to have a repeat of my EMG last week with a new neurologist however she told me that I need to wait at least another 4 months since my first EMG which I had in January this year. I had another full neuro exam done, reflexes, babinski etc...I was told it was all normal...
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    Swaying towards ALS...?

    I just realized that I don't have permission to post an attachment. Not sure how else I can get my EMG uploaded
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    Swaying towards ALS...?

    Thanks for the info olly & explaining how to load up an image. I thought mitochondrial disease affected young children usually? I saw a neuro last week who only does EMG's and she told me that it was too early to repeat my the test & that I need to wait another 3mths. May I ask your...
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    My GP informed me that I need to be reviewed as she feels this is neurological related. I have...

    My GP informed me that I need to be reviewed as she feels this is neurological related. I have a lot of pain and stiffness in the L leg which has now effected the way I walk. My symptoms are getting worse, my balance is also effected now. Who knows what is going on...only time will tell.
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    Hi notme, Hope you are doing well today. Wanted to ask you whether or not atrophy causes...

    Hi notme, Hope you are doing well today. Wanted to ask you whether or not atrophy causes pain?? I was told yesterday that my L outer calf has some wasting & that I need to see the neuro again. I've been having a lot of pain in my L leg especially the outer side for about 2mths. My lumbar...
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    Hi Kiara Hope you don't mind me asking about how your symptoms all started? If you could...

    Hi Kiara Hope you don't mind me asking about how your symptoms all started? If you could direct me to your original post so you don't have to repeat yourself that would be great. I am also in limbo land and it's terrifying! I'm suppose to be getting engaged soon but I have put a stop to it...
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    Swaying towards ALS...?

    I was told yesterday that I need to be reviewed by my consultant neuromuscular specialist and possibly will need further tests? I presume she meant swallowing studies? Will have to wait another 2wks before I can see him for review. I know my EMG was clean 3mths ago - but I continue to have...
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