Recent content by DonnaJ

I am truly sorry you lost your son to this horrible disease. We as caregivers are human and we do the best we can. I'm positive your son loved you and things happen the way they do for a reason they say. Please, don't beat yourself up. Take that energy and turn it into something...

Hi Mary, I'm so sorry about your Mother. My husband has had ALS for 8 years and for 8 years he has had muscle spasms as well in his abdomen and back. It goes along with the ALS. My husband takes Qaulaquin, baclofen, and zanaflex. If he didn't he would be rolled up into a ball all the time...

Everyone on here has different opinion. Mine is "no" it is not as rare as the statistics or whatever you want to call it reports in my opinion. A lot of people die before proper diagnosis so, therefore, I don't how they can call it rare. I live in West Virginia and it is unreal the cases of...

Wouldn't be just as good of help if he just signed onto the forum and read. It's all right here........

Yes Elaine your not alone. I am going through very similar things with my husband. He also has bulbar onset and has had als for 8 years. He is, I believe, suffering with dementia and ocd (obsessive compulsive disorder). I could go on and on about the things he does and its wearing me down...

I'm so happy and relieved for you Mary Jo. God Bless you! Donna-WV

My best to all as well. I'm sitting here at the computer listening to my husband try to gag and choke down his breakfast. I believe that boxer22 or any of us when we first signed into this forum make a choice to do so. We are all adults. We make that choice. What we read is our choice...

I'm no doctor but I would say that as long as you cough it (mucous) up the better off you are. As long as there is no blood in it and you aren't running a fever or feel bad (flu like or cold symptoms). My husband drools and coughs up salavia and mucous all the time and the Hospice nurse says...

Lorie, I'm so sorry. But, I agree with Irma. It WILL all be alright one way or the other. Just pray and let God know that your turning it all over to him. I know that is hard to do, but you can't just pray it you really have to do it. Just give it to the Lord. You will feel a peace fall...

Lorie, I'm so so sorry to hear you and Tim have been struggling. If you get him a lift chair try putting SOFT bed pillows under him at his lower back to keep the pressure off. Geeeezzzzz I hate this damn disease! Please take care of yourself. I've been wondering how you are doing. Maybe...

Thank you MaMaSara! It was right on the end of my tongue! lol. This is neat, we Are getting a collection of books and movies going, which some I have not seen or read so thanks! Love and Prayers to all Donnaj-WV

Yes, Mitch Album has done a wonderful job. So, ya know, there are movies out there. There is another one I can't remember right off it was on lifetime i believe a few years ago. I believe she has since passed away. The girl with ALS that lived in NY and she was a producer and her sisters...

No dear that is not the answer. Be open and talk with him, let him ask questions, but be honest that we all don't live forever, its just that some of us have a better idea of that day than others. Get his counselor at school involved or find him a counselor or anyone else to talk to. He needs...

Has anyone seen the movie "Tuesdays with Morrie'? It's about a Professor who is diagnosed with ALS and one of his students from years ago comes every Tuesday to see him. Good Movie if you haven't seen it. DonnaJ

Hi Paula Jane, My deepest sympathy for the loss of your mother. What an admirable thing she did by giving her brain and spinal fluid so that maybe someday others will live. But, remember she isn't gone forever, she just went to her new life in heaven and left her sickness behind. She is...