Recent content by des

I have been diagnosed with bulbar ALS. I wake up every night gasping for air. My vocal cords are messed up and I can't tolerate the pressure from a ventilator. I can breath better when standing. What is the course for this? Do I need a trach with a ventilator. Is there anything I can do to...

I've been dealing with this two and a half years. I had bad anxiety previous and when the twitching started and the anxiety elevated and has stayed there. Twitching - started all at once, and all over my body, with cramps, and they have not stopped. Twitches are constant but sometimes ease up...