Recent content by dana

Hey Sarah, If you like coffee, one of my dad's franchises is in the North Bend area I believe. It's called Dutch Bros. Coffee. You will have to give it a try and let me know what you think.

Hi Sarah, I'm from Oregon too. Where abouts are you from. My family lives in Southern Oregon, and my dad is the one in our fam who has ALS. It is a tough disease. Your husband is so young to be going through this...you too as a caregiver. Anyways, sounds like we have some things in common...

I would highly reccommend voice banking. I wish I could hear my dad say I love you again in his own voice. Sometimes I call his cell phone just to hear his voice on the message. He no longer uses the cell phone obviously, but we still have it and I occassionally give it a call. I also like...

The name of my dad and uncle's business is Dutch Bros. Coffee. (they are dutch and brothers...go figure) Anyways, if you google Dutch Bros. a few different articles pop up about the fund raiser. Or, you can go to their web site www.dutchbros.com to see the big ad they had in our local...

My dad, who was diagnosed with bulbar ALS in 2005 and has been on a vent since 2006, and his brother started a coffee business 15 years ago. The business has done pretty well and they have franchised out and there are now 102 locations in WA, OR, CA, and AZ. On May 4th, they asked all of their...

I am so sorry to hear about Granny. She always had such great advice and input to share with others. Her faith was always very clear to everyone, and I know that she is looking down on your family from a much better place now. Dana

Not only do you want to make sure your health insurance is all lined up, but you also want to make sure you have a life insurance policy too. It was too late for my dad to get a life insurance policy by the time he went on his vent. He could have, however, received one when there was just...

Vents Hello Teej, My dad is on a trach/vent and has been since Feb of last year. There are some good things with the vent, and some difficult things. I'll start with the pros. For my dad it was great because he could actually breath again. He got color back in his face and his energy level...

Hi Sara, I am 9 months prego right now with my second child. My dad has ALS, and is the first in our family to have it. The thought has crossed my mind though about what if dad is the first in our family to start the familial ALS and I too am a carrier. I have wondered about if I am passing...

It's interesting that you mentioned the navigation problems Teej. When my dad started having the "confusion," we noticed it mainly in his driving. He would run stop signs, pull out in front of people, and really made my mom nervous when she was in the car with him. That's how the dementia...

One of my dad's doctors perscribed him oxygen because dad was having a hard time breathing. (This was before he received a vent). It wasn't the oxygen that dad needed. He needed to be able to get rid of the carbon dioxide that was building up. WHat he really needed was a bipap, but that was...

My dad has dementia and it progressively has gotten worse and worse as time has gone on. This part of the disease is very difficult for everyone involved. It is difficult for my dad because he cannot get across what he wants or needs, and it is frustrating for us because there are times we...

There was a thread about choking a long time ago, and it was very helpful when my dad was experiencing the choking episodes. One person told us to have dad tilt his chin down towards his chest when he swallows, that way the throat can open up. The other thing is to not panic. Easier said than...

My mom and dad are now in seperate beds and rooms. My dad is on a vent and needs 24 hour supervision, which my mom cannot do all day and night. She has to get sleep so she can be on point throughout the day and help my dad. The vent is kind of noisy so my mom cannot sleep in the room. She...

I was just going to ask if it was playing in the States. I didn't see it in the tv guide.