Recent content by ccordone

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    My husband passed

    Three weeks ago today My husband passed after struggling with ALS for 5 years. On the morning of his death he was talking (quielty) and still aware of his surrounding. That morning I called hospice to give me extra medicine so he could sleep better. He was up all the night before. That...
    • ccordone
    • Thread
    • advice als death father hospice husband medicine memorial night sleep support
    • Replies: 19
    • Forum: In memory of
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    Nursing Home

    Has anyone ever had enough and was unable to do it anymore? I have a 12 year old son that helps me, but i care for my husband most of the time. Was wondering if anyone has put there spouse in a nursing home? my husband is unable to do anything for himself. I have help when I am at work but...
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    getting to be to much

    My husband family lives 2000 miles away from us so they can not help. I also get 77 hours worth of care to come to my house, but unable to find all that care. I usually have 50 hours worth
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    getting to be to much

    My husband is getting to be to much. He doesn't sleep and so I am up most nights with him and I work all day to support the family. I cant get anything done around my house and I have an 11 year old that does way to much. My son helps with getting my husband up in the morning , bed at night...
    • ccordone
    • Thread
    • angry bed family frustrated hospice medicine nursing home pain sleep support work
    • Replies: 2
    • Forum: Current caregivers
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    Cough assist/ EMST 150

    My husband was diagnosed in December 2013 Currently he is unable to walk and use his hands. Swallowing is being affected but he still talks well. Looking for a to get a cough assist or should I get a EMST 150? My husband is also on hospice and using methadone as his pain medicine. Does anyone...
    • ccordone
    • Thread
    • cough assist diagnosed drugs hospice medicine pain sleep swallowing
    • Replies: 4
    • Forum: Current caregivers
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    HElp

    One my husband has changed a lot my husband can't do anything. He hands and legs are not working. He is currently having problems swallowing He has lost 190 pounds to 135 pounds. Hospice has come and they said he does qualify for it. He doesn't want a feeding tube, or anything else. He...
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    CALS Roll Call Continued

    I feel very guilty even writing about this. My husband is making me crazy. He is completely mean to my son and myself. I try to do everything exactly the way he wants but I can never do anything correct. I have 45 hours of care but it is not enough. He is up all night and so am I. I then have...
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    HElp

    I feel very guilty even writing about this. My husband is making me crazy. He is completely mean to my son and myself. I try to do everything exactly the way he wants but I can never do anything correct. I have 45 hours of care but it is not enough. He is up all night and so am I. I then...
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    burning hands and feet

    Thanks for your reply
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    burning hands and feet

    My husband hands are always so hot. Like they are burning. It really bugs him because they are swelling and hurt if they touch each other. I am always helping him separate each finger. His feet on the other hand are cold and staring to swell regularly. Is this normal?
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    Angry

    I totally agree.
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    Uncontrollable shaking

    no other symptoms. weird. when he three hours later he was fine?
  13. C

    Uncontrollable shaking

    Last night my husband had a shaking fit. He could not stop his body from shaking and his speech was also affected. Anybody have you heard of this. It lasted for about one hour. Collleen
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    Angry

    No, he is very determined not to have one, His next appointment is 4.29 and I think he could use a antidepressant. What is FTD?
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    Angry

    Quick Question, do many people get mean and angry at the caregivers. My husbands patience is slim to none especially at night.
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