Recent content by captwilly

you have made my day I fell not long ago (something I'm rather good at) and broke my wiping arm, so it presented a problem...Let me draw you a picture-visualize the wide world of sports-a down hill skier in the starting gate-in full stoop with his bidness stuck up in the air-got it? Now enters...

At the risk of offending.... First let me say thank God that I dont have the delima that you do. Having said that let me make a couple of observations; you and your husband sound like the type of parents any child would be lucky to have, you must ask this question..would I love my child any...

Check the local area There are a number of chairitable org's that offer air transport at little or no cost. Call a fixed base operation at the airport and ask if any are to be found in the area. If no luck, talk to groups such as the Masonic lodge, Lion's Club, Rotary, even the local chamber of...

Thanx for your input... I am going to see a gastro doc today to discuss the feeding tube thing and plan to ask about the control problem as well. I'' keep you informed as to what he says. wm:-D

Sounds familliar I started out with loss of feeling and weakness in my right arm. I have lost pretty much the use of the right and now the left has decided to join the party. Whats next? Who knows. I've grown a beard (something I always wanted to do) because I can no longer shave. I wont let...

Im not sure about digestion but..... Not to change the topic but I have a question concerning the digestive system. Lately I have developed a serious control problem. I was told that the spincter muscle was not affected by ALS, but sometimes instead of my saying here it comes, I'm forced to say...

Started out with fatigue My problem began with overall fatigue, then came ths loss of function in my right arm and now the left is joing thee fray. As to the coffee cup issue, suggest a plastic travel cup, it keeps the coffee hot and weighs very little. For cold liquids, I use a straw, works...

Hang in there.... I know how you must feel, as I too have been as discouraged as you. Remember those who love you and those you love and try and see how you going will affect them. Quite often I wonder why my wife of 44 yrs is being put through the torment that she endures, it isnt me heck Im...

Quality; go to Mayo You need to know that when I was first seen, my GP suggestewd physical therapy. After diagnosed with ALS the Doc said that exercise was counter productive cause I dont have the ability to build muscle, all I can do is conserve that which I still have. Now I routinely use...

I have had this several times and you describe it exactly, There doesnt seem to be any pattern to the symptoms you describe, but I can tell you that is scary when it occurs. Have you experienced any incoctience at all? Yesterday while out with some f riends, I almost made it to the bathroom...

Jamie thats great news Proves one thing for sure prayer does help.. Im so glad that you dont have to travel this road, but always remember no matter which road you travel you are not alone....wm:-D

Why worry about the unknown? :) Kris: you can worry yourself nuts about the unknown or you can get on with life till you find out one way or the other.. I have als and I can tell you itsw no walk in the park, but how you react to the disease is strictly up to you. You can have the illness but...

You need an ALS workup My weakness started out in my right shoulder, no pain to speak of just weakness. The family doc said I needed to see an orthopod...The ortho=doc said I needed to see a neuro-doc....the neuro-doc said to see an ALS specialist, so I went to Houston, Tx to see Dr. Stanley...

just turned 67 I was diagnosed'ed in april this year and have already lost the use of one arm and most of the other. Takin it one day at a time...wm:-

You need to see a specialist I started out with weakness in one arm, my family doc said it was a herniated disc in my neck and sent me to an orthopod...He did an MRI and said he wanted me to see a neuro-doc, which I did. After finding out what it feels like to be tasered, the neuro-doc said I...