Recent content by Caliburn

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    UMN symptoms in legs

    i have horizontal nastygmus in both eyes. Makes me so dizzy sometimes i cant stand. lol. But they dont really know what i have.
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    I DEFINITELY have atrophy/fasciculationss and had MRI - advice needed please

    and if your tongue has ridges along the sides, its simply from your tongue resting against your teeth when your mouth is closed, that isn't scalloping. just relax! :D everything will work out.
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    I DEFINITELY have atrophy/fasciculationss and had MRI - advice needed please

    you cant see the nerves under your tongue. your looking at a saliva gland. they are supposed to be yellow/pale.
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    Questions about muscle cramps in ALS

    ive read some medical journal articles that stated "cramps can occur in any affected muscle", they didnt explain further. i thought it was kind of vague. but if its helpful then i guess thats good. i can find the articles again if you want to see them. also; are the cramps random? i always...
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    Blue green algae research, possible breakthrough

    cyanobacteria are blue-green algae, the 'cyano' prefix is where the blue comes from in blue green. cyanobacteria are the oldest form of algae. They are basically 'photosynthetic bacteria' from which most alga are derived. theyre responsible for alot of the shellfish poisoning syndromes that we...
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    Blue green algae research, possible breakthrough

    the substance from blue-green algae, seen in the native guam chamarro population with ALS, is beta-Methylamino-L-alanine (BMAA), an excitotoxic neurotransmitter. i believe they found it in extremely high concentrations in their brains while doing tissue analyses. they ingested it, not from...
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    Diagnosed as of 10/1/13

    sorry to hear about, this D: if ya ever need someone to talk to send me a pm hang in there.
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    look at an isaacs syndrome page. just to give you an example of something that could be causing...

    look at an isaacs syndrome page. just to give you an example of something that could be causing what you are experiencing. it could be; lyme disease, mito. myopathy, ion channelopathy, BFS, BCFS, Chronic Inflammatory Demyelinating Polyneuropathy, vitamin D deficiency, Vitamin B12 deficiency...
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    This has taken hold of me....

    im the same way. dont let it get to you. just chill out, take a deep breath and enjoy the moment. after all, you could be walking down the street tomorrow and get nailed by a bus, but your not worrying about that right? (you probably have better odds of getting hit by a bus than having als...)...
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    so scared I have ALS

    waiting is what youll have to do. what do your twitches look like? i know waiting sucks, but just have hope. :D i hate to say it, but als is a very difficult disease to diagnose, as im sure many people will tell you on here, and all anyone here can offer is opinions, which, whatever they say...
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    This has taken hold of me....

    it took me 9 months to stop worrying.
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    Update

    Hey everyone, Cali again. Just got the word that i have Isaacs syndrome. I just wanted to thank you all for putting up with my anxiety for the past few months, although its been better the past few weeks. Ill still pop on now and then try to talk to some of the worriers. Wish everyone here...
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    me

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    Tongue Atrophy?!?!?

    point your tongue straight out as hard as you can, the teeth marks will go away. if your tongue had atrophy so severely that you had big dents in it you wouldnt need to ask if it was atrophy, you would be having much more serious problems. and do not look at your tongue in the mirror, it will...
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