Recent content by bluesea

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    i dread the morning

    thanks guys I so appreciate yr kind input. you're soo right. I need to move in the morning otherwise I turn into a stiff board and it just gets harder to make the effort. the inactivity then just leads to malaise. now, after I wake i'm moving legs and arms in bed for a bit which helps and i'm...
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    i dread the morning

    hey guys thanks for your feedback. think I was misunderstood. my complaint wasn't about fog or fatigue in the am but difficulty moving and all stuff exacerbated in the morning. reason I can't reach for med is not that i'm tired but it's too hard to move. arms are glued to my sides and it can be...
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    i dread the morning

    After waking in the morning, I can't move. I feel catatonic, nearly paralyzed and not just for a while but for hours. I lay there for hours. it scares me. I can move but I can't virtually. taking a pill on beside table is for example usually requires more effort than I can possibly manage. i've...
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    swimming?

    very interesting. I haven't been able to swim for about 3 years due to my umn stuff. you'd think swimming or gentle moving in water would be easier than movement on land. nope. I've had same experience as others. my hips and legs are absolutely useless in water, so weak I can't stay afloat. the...
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    Exercise with PLS

    welcome lincan, i agree with all. movement is critical. easier said than done. i went through a very long stretch where i was couch bound. to avoid pain and it was too damn frustrating, my limbs, hands body don't cooperate. being sedentary made things MUCH worse, exacerbated stiffness/muscle...
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    article and pls doc list

    Thanks for your reply johnny and helen. yup, this neuro stuff is a minefield.
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    article and pls doc list

    Hey guys, PLS has been on my radar for a while. it's the ONLY condition that corresponds with many of my symptoms. i'm 4 years in. 100 tests (a conservative guess), dozens of doctors and several misdiagnoses. For the past many months, i've put finding a diagnoses on hold. began to matter less...
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