ottawa girl, your memory serves you well. I am neither a sufferer nor a carer, lucky me, as you say. What you seem to have forgotten is the fact that I cared for my aunt, who had bulbar onset MND, until the very day she died. I was with her from before diagnosis when she first started slurring her words, I was with her during her diagnosis and until she took her last breath, lying in a hospice, unable to move, 16 months later. Lucky me?. How very remiss of you to have forgotten that small fact. Olly, your childishness does not surprise me as you have exhibited this trait before and had your posts removed. It is sad that you continue to behave this way and encourage others in your way of thinking. Very juvenile for a grown woman and a bad example to others. As I have tried, obviously in vain, to point out, this forum is in need of moderators. I do not have muliple identities here but the very fact that you accepted this statement without question says a lot. I invite David to check my details, including my email address and verify this. This forum needs to be regulated properly and frequently to bring it back to the standard it was when I first joined and could depend on it for reliable information from dependable people. Sadly, at the moment this is not the case either for myself (I at the moment have a friend with MND, if you read back you will learn this) or for others. So, if you could draw your tongues back into your mouths and stop wiggling your fingers at the sides of your heads and act like responsible adults, we can maybe get back on track. Have another read at the previous posts and ask yourselves if this is the way you really want to respond.