Blog

The Waiting Game

I went to the MDA/ALS Clinic in Oklahoma City on June 26 for the first time. I was diagnosed in Houston and went to the clinic there in May for my first three month check-up. But the trip is at least eight hours and an overnight stay, so I have chosen to go to Oklahoma City, less than two hours away. Dr. Beson was trained by Dr. Appel in Houston and I was impressed by his warmth and knowledge. He doesn't see any progression since my diagnosis. He was very encouraging about the long-range outlook.

'Footprints'

'FOOTPRINTS' is my favorite Poem. I feel that all my Life I have carried. New Footprints Song http://youtube.com/watch?v=PvizQnQN-vg 'Footprints in the Sand' One night I dreamed I was walking along the beach with the Lord. Many scenes from my life flashed across the sky. In each scene I noticed footprints in the sand. Sometimes there were two sets of footprints, other times there were one set of footprints. This bothered me because I noticed that during the low periods of my life,

Summer

Well for me school is finally out. I work at a Continuous Learning Calendar school which has a 'year-round' schedule. We start school the first week of August and then get out three weeks in October and November, then a regular Christmas break, then three weeks in March. So our last day of school was last Friday, the 13th. Then teachers had to report on Monday, and I had required workshops Wednesday and Thursday. So I am out for my short summer.

Freddie and USA Today

Hi I just wanted everyone to check out this link on my hubby: We were approached by abc and cbs. I know that some of us do not get the media attention but I am in the fight for all of us....

Why I CHOSE to be a Christian?

Recently I was asked, 'I just find myself saying, 'Well what about this religion? What about that religion?' and believing in happenstance or luck doesn't really do it for me either. So if you wouldn't mind, could you share with me your own experience a little more? I think it might help me understand what I'm lacking.' This question was asked of me by one of the Forum members. It might take me a few tries to convey why I believe and what I believe. To begin with I am not a member of any denomination. I just consider myself a follower of Jesus Christ.

'Tim' and 'Capt. Al' (mtpockets)

I think Tim is starting to have swallowing problems. It is all I can do to keep it together. I have made an appt. for him on Friday. I think about whats next. I hope we are not going to have to face this yet. I find myself becoming emotional when I picture it it my mind. Even at the end of everyday that you have done all that you can to Comfort them, Make them as Happy as possible. Get them everthing they need. You still feel Helpless. What a feeling. The worst feeling/symptom I have ever had that want go away.

I'm back from my first MDA/ALS Clinic

I went to my first MDA/ALS Clinic on Friday in Houston. They really have it down to a science there. There were 40+ patients and everyone had at least one family member with them, most had two or three. It started at 8:00 A.M., but I was encouraged by another patient to get there as close to 7:00 A.M. as possible, so we got there at 7:20. I was the fourth person to sign in. I was seen by: Dietitian Appel Score Grading Occupational Therapy Grading Occupational Therapist Respiratory Therapist Pulmonologist Speech Pathologist Physical Therapist MDA Representative Social Worker

I'm off to my first MDA/ALS Clinic

Tomorrow morning I will be leaving for Houston to go to my first MDA/ALS Clinic. It will be all of the same doctors and therapists that were in on my diagnosis. My parents are going and my daughter, breebylou, is going too. She has posted a few times here. She has been worried and stressed about my diagnosis, so I think that going with me will help her understand it more.

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