Blog

First of all, I would like to say that I like to Read, Read Poetry, and Write. (which I don't get to do much of). When I had just one of my bad days Friday when Tim begged me to take him out of his 'Suffering' and Torment and I had an argument with my Family. I came home Emotionally exhausted which is quite frequent. I just didn't think I could make it through the day. That night I was sitting at my Computer in a Daze.

Intersession is finally here! Now most of you have no idea what I am talking about. Our school is a CLC (continuous learning calendar) school, or in other words year round. School starts the first of August and we get three weeks off in October/November and three weeks off in March. This year we have to give up one week because of the 'Ice Storm of the Century' we had in December. We were out of school for a week because most of the nearly 500,000 people in town had no power. My house had no power for eight days.

I agree with the replies about the Politicians. God help them if we are interviewed by the local news. I will tell all about the lack of support from the Politicians. That is why I am their nightmare and I want go away. I have an idea I am cooking up that everyone can participate in. I will Blog it as soon as I have it together. Thanks Guys and Gals! Lorie

Occasionally I have a day where I wonder if I made the right choice when it came to getting a divorce. And then there are days like today when the answer is so clear, 'Yes!' that it smacks you in the face. My ex called me at school and the conversation went something like this: Ex: I talked with my lawyer and you need to draw up a will right away. When you die (our daughter) will not want to live with me and your family will fight me for custody of her. Me: Since we have 50/50 joint physical custody, I think you would automatically get the kids.

As you know I am an ALS Advocate. I have been a Nightmare for my State (AL) Senators and Rep. for over 1-/12 years. Until now the only response I have received from any of them is as follows: Senator: Richard Shelby-Always sends me letters. Senator: Jeff Sessions- Non Responsive House of Rep.: Jo Bonner- The one and only recent reply posted below. He is going to tell me about the H.R. 2295, the ALS Registry of 2007.

This morning at church when I turned around to pick up my purse after the benediction prayer, there was an envelope on my seat. I opened in and inside was a card and another envelope. The card was a beautiful Christian card with a message of encouragement and a beautiful illustration. There was a handwritten message on the card and it was signed 'Your Sister in Christ'. I waited to open the smaller envelope until I got out of church because the message in the card talked about 'this gift'. When I opened the envelope there were ten hundred dollar bills in it. I couldn't believe it.

I accomplished quite a lot today. I started at 7:00 A.M. Jazzercise. Then my son had a basketball game at 9:30. They lost, but he had his first two free shots and he came really close to getting them. My office/playroom had quite a few boxes of books that I don't have a bookshelf for and I moved those to a closet. Then I organized a little in the garage, but I made sure to stop and rest and not overdo it. I really feel like I accomplished something. And although I thought I would be really tired tonight, I'm not. I love Saturdays like this.

Well, my head and heart are in a better place than yesterday. I still feel overwhelmed with the idea of all the money I will owe for my hospital stay in Houston, but I feel more in control of my emotions and the situation. At work today I felt like I would cry at any minute, but I didn't and I'm glad I made it through another day. I look forward to the weekend and working on my office/playroom to sort and organize and get ready for my new computer.

I am sooooo bummed out. When I received my insurance statement for the hospital bill for my visit to Houston, I realized that I will have to pay considerably more than I thought out-of-pocket. I have done my best to stay upbeat about the cost of all of this, but this brought it home to me. Not only did feelings about how I will be able to pay for this, but worries about not eventually being able to work, going on disability, SSDI, and Medicare came crashing down on me. I spent the whole evening stewing in a pot of worry and self-pity.

Tonight we had choir practice. We have begun to review a song that I sang a solo with the choir on five years ago from Brooklyn Tabernacle's CD 'Be Glad' called 'God is Still Doing Great Things'. I found out tonight that we will be singing it on Easter Sunday. Right now singing is barely affected by my slurred speech, but I have no idea how long I will be able to sing. So I am really excited that I will be able to do this soon. It is a great song and the lyrics are especially pertinent to what I am going through in my life.