Blog

I have been thinking a lot lately about life, death and the journey in between. I have come to realize that no two people are on the same journey at the same time. Although it may seem similar, in the end we come in to this world alone, we leave it alone. I have boiled life down to a few very simple needs we all share. We all strive to live, love and laugh. I can break down each basic need in to other sub categories but will save that for another day.

November 8th 2007 I went to see my doctor about my tripping, leg giving out. He sent me to the hospital for x-rays and ct scan. The emerg. dr found nothing wrong other than when I bent my knee my leg would give, so he referred me to a neuro. This was the beginning of my year of being diagnosed. I had several MRI's, CT scans, emg's, blood work for everything known to man. If my doctor missed something we would ask if i was tested...if I wasn't I did the tests.

When riding a motorcycle and coming to a stop an unwanted stumble try not to drop make this badness go away while walking on carpet so nice and flat tripping over an invisible line and going splat make this madness go away making french toast even better with ketchup when you let go quickly clean before the wife gets up make this badness go away the walking is stiff and sore and running cant be done its off to the doctors i'm not having fun make this madness go away many doctors to visit and just a few twitch its off to physio she killing me , the evil witch make this badness go away

My old truck has been sold. Its going to a person in our car club, so I know its going to be taken care of. Ya know , when you turn 50 , you are supposed to be getting out of debt , looking for places to retire to on the water , playing with the big boy toys. Now , like most , I am back in debt up to my eyeballs , and all of my toys are gone. At least I have some happy memories. Glen

Well it was brought to my attention that my family may be loosing the house and may other things. I was asked to go back to help financially. That will happen sometime this month. unfortunately, i will lose my use of my powerchair and be house confined. that is my trade off to be with at least my kids. I probably won't be posting much anymore, but you all are in my thoughts and prayers. Micheline

Today I am just sitting back and going to concentrate on just breathing. A wise person has recently told me that I need to just stop, slow down and let the world go by. Even for just one day. Can't do everything. Can't save the world. I can in the end, only try to save myself. What does it all mean? I have no idea but I am sure in time, I will. I have spent so much time as of late trying to take control of my life that all I do is create chaos and the cycle continues. I am stopping the ride for a while and just stepping off. Going to watch rather than participate for a while.

Well this week has been very trying on my patents. My power chair has broken down 3 times, but now I have to wait till Thursday for them to fix it. As well I have noticed with the cold weather my arms tend to seize up. I have being using a straw for now, but I know that’s not gonna last long before I lose it completely. My name is on the list for a facility, my husband asked if I want to come back home until I get my call (they give you 48hrs to move in),stay where I am on my own and possible put my family into financial hardship, or my girlfriend has offered for me to move in with her.

The reality of a power chair. I finally got my w/c van. Its got a lift, not a ramp. My scooter is too long to safely get it in and out of the van. My transport chair is too wide to go on the lift. Its a loaner POS. I fell Wednesday night , shook myself up quite a bit, no battle scars or bruises. Just some muscle pain and a sore rib. I spoke with my OT on Friday , who called the ALS loan cabinet lady. There are power chairs available - send in some specs.

I had to delete my last entry...it upset some people. I don't know when I'll be back.

Yesterday was not a bad day...My cousin came to visit we laughed and cried. I asked her about her opinion for my future, she cried. :( I am searching other avenues for my health and accommdations. My daughter of 15 offered to live with me?! I am unsure of it. Someone told me there is probably 3 reasons why she does...1) she feels alone at home 2) she wants to spend as much time with me 3) keeps me out of a facility (this one I never thought of). How do you ask...I can't ask her to do this, i know it will break her heart if I say no.