Slurred speech
Submitted by Kellykago69 on Mon, 06/20/2016 - 22:22
My dad was diagnosed with bulbar onset ALS in Oct 2012 and he passed away Feb 2012. We suspect he may have had symptoms long before the time of diagnosis but never told us. About 6-9 months ago I noticed I was having slurred speech. I chalked it up to being tired, but it persisted so I finally made a Dr appt. My mri was normal and my nerve conduction and emg were normal. However my speech continues to be slurred and I've recently noticed I'm having difficulty moving food around in my mouth. I'm also very tired and I feel less strong like everything takes more effort. The neurologist said to contact him if my symptoms worsen but gave me no other avenues to explore. I'm 46 and my dad was 68. What are the chances of familial als?
Comments
Big Rob
Wed, 07/13/2016 - 00:04
Permalink
Same Feeling
Hi Kelly,
i Know the feeling. I lost 2 brothers to ALS. My little brother Mikey (35) was diagnosed in March of 2013 and passed away October of 2015. My older brother Kenny (45) was diagnosed in October of 2012 and passed away May of 2016. Familial ALS crosses our minds all the time but when i went to see my nuero he told me that my twitching and pulsating feelings was self awareness of the disease. I am 41 and my other brother is 39 and my sister is 47. I have noticed my voice becoming a little more hoarse when talk. I also have to clear my throat as I feel i have mucous and it gets in the way but no slurred speech. At this point i just keep going to my dr's and getting bloodwork done. I try and take of myself the best i can and eat healthy and exercise. Please keep me posted.
Robby,
kellykago
Wed, 08/03/2016 - 16:05
Permalink
New Neurologist
I was referred to another neurologist who received training at UCSF ALS Clinic. She has ordered genetic testing and a round of more testing (respiratory & speech). I should get the genetic testing results in the next couple of weeks. My respiratory test was normal. Today, I had a speech therapy assessment and she noted that I have mild dysphagia and disarthria. She noted that my volume is reduced also. Right now, it is a waiting game, but I am definitely scared.
Big Rob
Wed, 08/24/2016 - 11:18
Permalink
Hi kelly,
Hi kelly,
I go to my ENT Dr. next week. As soon i get any results back i will share with you. Please let me know about the genetic testing results. We are both scared but we will get through this.
Love you Sister,
Big Rob
Rorys
Thu, 04/06/2017 - 04:29
Permalink
I understand what you felt...
I understand what you felt... that's terrible when you can't do anything.
Felicia
Mon, 12/04/2017 - 09:25
Permalink
That's terrible when you can
That's terrible when you can't do anything. I had such a feeling.
Add new comment