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    ALS, PLS, MG disease ?

    Hi everyone. I took some time off the forum, and Im back.. I;m like a groundhog in the winter... LOL.. Spring is coming! Just an update my Dx is up in the air at this point. I still have weakness in upper body and pulmonary muscles. Im on a new Avap/ vent machine called the trilogy. I use it at...
    • icecreamlady
    • Thread
    • als back breathing clinic diagnosed emg emg? muscle weakness muscles myasthenia gravis neurologist night pls tests trilogy update vent weakness work
    • Replies: 6
    • Forum: People with ALS (PALS)
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    Bipap/Avap

    Hi everyone- I recieved my Bipap/Avap machine last week. The masks are kind of a pain, you look like you are about to go scuba diving! Anyway, I feel much better during the day... and if i get short of breath I will use it while watching TV or just relaxing. My cough assits comes tomorrow...
  3. I

    Shortness of breath

    Hi.. Well, I had a trip to the E.R. I have been having a lot of problems with shortness of breath. It was bad yesterday, and thought it would be best to go to E.R. I started feeling better and was released. I go next week to get bipap/ and cough assit machines. Since I still have the...
  4. I

    Question?

    Which motor neurones control your muscles in your diaphram and stomach? Upper or Lower? I go for two sleep studies in the next week. My stomach muscle seem to have gone away, I feel like I'm 5 monthes pregnant ( LOL). I have shortness of breath, so my doctor thinks I may need a Bipap at night...
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    Pulmonary function test

    Hi.. I had pulmonary function testing done. All my lung volumes were good. My Mip and MEP numbers showed muscle weakness in the diaphram. Now, I have to get more testing done. Does anyone else with PLS have muscle weakness in diaphram? or is this a sign of ALS.... ? Thanks , ice cream lady
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    ALS Clinic

    Hello. I was diagnosed with PLS in June. I got in touch with the ALS clinic and they suggested a physical for a second opinion. Has anyone with PLS gone to a ALS clinic for a second opinion? Thanks, Ice cream Lady
  7. I

    loss of gag relax

    Hi.. I was diagnosed with PLS last week. I have had weakness in my upper body and pain in my legs, for over a year. I have stiff joints, and Fatigue. I started to twitch in March, and lost my gag reflex in April. I seem to have a horse voice and keep clearing my throat. I also have memory...
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