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Hi Lisa, i cant imagine how frustrated and angry you are. and you have every right to be, this is a very difficult situation, even if your mother were willing, its still hard. im glad you found out about hospice, they will pay for meds, the bed, equipment, everything, they came in and gave my...

LINDA, your mom still helped, every person with ALS helps in finding a cure, each doctor appointment she had, each time she was evaluated, and her progression was documented, all of this is documented and used for research purposes. The information they gathered from her during her progression...

That is beautiful, that your mother's fight with ALS, is not over, she will live on through the research they do. i like to imagine that my mothers donation, will be in the study that finally leads to a cure! Its so important to make these donations, i know it has to be VERY difficult to make a...

wow, you all are really wonderful, thank you for all of the kind words and support! as i sat here and read all the replies, i could feel mom next to me. she is with each one of you as well,, next time you are having a hard moment, or day, think of my mom, and you may just get a little boost from...

wow, you all are really wonderful, thank you for all of the kind words and support! as i sat here and read all the replies, i could feel mom next to me. she is with each one of you as well,, next time you are having a hard moment, or day, think of my mom, and you may just get a little boost...

Hello Group, My name is Elizabeth, I am nancy's youngest daughter. She Visited this forum often, although in the last few months, she hasn't been able to. Mom passed away, sept 12. she passed peacefully after slipping into a coma like state the day before. I wanted to extend my greatest...

Hello All, Three weeks ago Tuesday I had a laryngectomy to relieve my choking. It has been a rough few weeks but finally feeling like I will make it. lol. The relief from the choking is great but there are other things, as there always are. I am lucky to have my sister staying with me and...

I have not been on for awhile and came on today to ask Joel about what his thoughts on a laryngectomy were. I am going to get one and wanted to go over the decision with him as anyone with a question about this disease would want to run it by Joel. I am so saddened to find he has passed. I am...

I was diagnosed in January 2009 beginning with slurred speech and Dr. said I was slow progression. I have had a feeding tube for the last year and can no longer speak. I have weakness in my left hand and my breathing is labored and I tire very easy and unable to do much without exhaustion...

Hello all, just saw messages wishing me a happy birthday and want to say Thanks. I travelled by myself in December to Chicago and it was a bad experience for me. I had choking episodes on a full plane and of course it started a panic in me and the people around me did not know what to do and I...