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  1. 1

    VACATIONING with ALS - HELP we have never done it before

    just to speak to the fishing if he can cast, get a long piece of PVC pipe and cut the end to be beveled like a needle. Then hammer it in the sand. After casting he can put the rod in the pvc giving him a free hand for reeling. Just a thought. I hope you guys have a GREAT time on your vacation!
  2. 1

    A good story

    Hi. I posted here a few months ago from iraq and now that Im home I thought it would only be fair that I followed up with a note of encouragement to all the worriers and for all those that comforted me when I needed it. I feared ALS for a year, I even had some bad stuff on my EMG, chronic...
  3. 1

    11Bravo update

    Hello everyone, I thought I would give a quick update. I arrived safe and sound back to the states in June which is a great thing so on to the med stuff. I had my appt bumped up due to a cancellation. So I went and saw Dr Brown at U of Penn in Phila the other day for another EMG / NCV and...
  4. 1

    Started an album of Hubby

    Hey, I think a photo album is a great way to show that life goes on and make the best of everyday. Thanks guys for the great photos and sharing with the group. You are very fortunate to be able to travel and spend the time with your family like that. Have fun. 11B
  5. 1

    Please read

    James, I can only speak for myself. I have had 2 EMG's the first was simply on the affected arm and the second was on arms legs torso neck hands. I second Beth in that the EMG was much better for me than a trip to the dentist yuck! I left directly after getting the EMG and went for a jog to...
  6. 1

    Bossman is at peace

    Bossman may you Rest In Peace, I can picture you riding your bike in the sky. Bossman's posts always stuck out to me as I am an avid biker myself and can't imagine the toll this rotten disease took on his lifestyle so quickly. 21 gun salute to the Bossman! RIP Gone but NOT forgotten!
  7. 1

    Nearly a year since the 'dirty EMG'

    Whats up Jim, I too had a "dirty" EMG. I am scheduled to have another when I get back in the states sometime this summer. I have to admit that I personally have been fighting that inner worry wort on whether I really have something wrong with me or not. I just remember the doc saying yeah thats...
  8. just so you could put a face to the words, Sept 2008 Baghdad

    just so you could put a face to the words, Sept 2008 Baghdad

  9. Go Phillies World Series Champions!!!!!!!!

    Go Phillies World Series Champions!!!!!!!!

  10. me

    me

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