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It's hard to believe that it's been a year since I've checked in to the forum. I'm sorry to say that I generally only use the forum when I can't handle my stress alone. My father was diagnosed with ALS 3 years ago. Since that time many changes have taken place. As each one occurs, the family...

We did our bake sale the past 3 days to raise money for the Walk to D'Feet ALS. I had pictures from last years walk and my mother-in-law and I praising the care and assistance ALSA has given my family. We rasied $105 and got the word out. We even got a new member for our walk team! Kim

My dad had problems with the ventilator again. His internal balloon had a slow leak again and the vent tube needed replaced. They got it right this time due to his private duty nurse. It only took them 1 hour in and out of the ER to correct the problem. Concern is that no one is telling them...

I need help from you caregivers. My mom is the caregiver for my dad. He has been diagnosed with ALS for the last 18 months. He was sent home on a ventilator last month and my mom has been his primary caregiver as her insurance does not cover private nursing care. She is so burned out. She...

Hi folks. My dad is going to the ER tonight. As expected I'm worried, but also not expecting bad news. His ventilator balloon will not hold an inflation making eating difficult. Has any ever had this happen? Is this common? Did we break it somehow? Kim

Hi. I am the daughter of an ALS patient. My father and I have always been very close and this is a very sad time for us. He was recently placed on a ventilator. We try to be supportive for my mother who is his full time caregiver until we can find some help for her, but the help never feels...