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new scientific research Has anyone read about the the new skin cell developement/stem cell research? I've read reports from CNN that state it could be months before they may find out how ALS affects motor neurons. I also saw on the MDA website were they are working on a vector . I am very...

All I can say is hang in there. This disease is very hard to accept, considering all the other diseases out there. I am sorry to here about your mother and alzhiemers. The only consolence I can give you is your mother will not no what is going on. Your Father on the other hand will suffer the...

new member My brother is going to be a new member of this forum!. He should be on here soon. His name is Rick. I have told him how helpfull this has been to me and he is looking foeward for your support. Thank all of you, Mary

help Are their any treatments out there that are expiremential that could give my brother A FIGHTING CHANCE? He is on Rilueck and Lithium it's not helping. Does anyone know of anything else that could help? He was diagnosed in June and at that time he was walking. It seems this is going very...

I am from Illinois. It is my understanding that it takes 6months to get SSD and Medicare may take up to 24 months. My brother is 49 years old. Do you know anything different regarding this information?

I think I would try a commode next to the bed before I would have a catheter. If you have help that would be easier and less chance of infection. You could also have a bed pan I no that sounds awful but catheters are high risk for infections especially in women.

Dear Jane, The Doctor's in Iowa City feels the whole family needs counseling for what is going to happen. My brother Rick has a wife and one daughter. Both are in severe depression and possibly in denial. Our family is all in the same area. I have a sister and another brother. We just lost our...

My brother was again diagnosed in Iowa City. There was no doubt in their diagnosis. He had no testing none. They suggested psychologicical counseling for the family. He is taking it Rilicuk and Lithium. He did loose his job. He has no income. We are setting up fund raiser's for him. His right...

My brother has an appointment next week at an MDA clinic in the University of Iowa Hospitals. I checked their website and they said at your first visit you are seen in the neurology department. Does that mean he has to be retested all over again? Does anyone know anything about the first visit...

My brother was diagnosed with ALS on his 49th birthday. I asked his DR. about Lithium and he said he would prescibe it to him. A week later he said he needed to go to a speacialty clinic. Since that he has not heard back. He has since lost his job and has no insurance. He applied for social...