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  1. T

    Is this Bulbar symptoms

    Thanks Rose for the information, I found the sticky and this is very good. They have diagnosed anything and will look into Myofascial Pain Syndrome. You all helped me more than you know.
  2. T

    Is this Bulbar symptoms

    Rose or anyone, where is the sticky referred to. I have looked all over the place. ***** That sticky at the top of the page with information on EMGs is very helpful, if you follow the link to the site where various scenarios and results are discussed.
  3. T

    Is this Bulbar symptoms

    CB, congratulations you have very good news and thanks to you all, what a great deal of good info. I did not know that MRI of the neck would show atrophy! I had a head and neck MRI and they phoned to say both were normal. CB, in answer to your question, YES I would think EMG would rule it out...
  4. T

    Is this Bulbar symptoms

    A thought to all though. Is there any sort of vitamin/herbal changes I could make to delay/avoid this disease. I have read much info on this forum but did not make notes of specifics. It is understood of course there are not guarantees but willing to experiment.
  5. T

    Is this Bulbar symptoms

    Hello Beth, I am truly sorry to hear about your situation and with all of this you take the time to write. I do have a Neuro visit soon and will update after that so thanks for the advice on questions. You may and others on this forum understand this as the reply is very, very much...
  6. T

    Is this Bulbar symptoms

    Hello Bob, thanks for the reply. I have been impressed by the compassion on this forum. Most of you all are facing something that I cannot imagine. I would like to hear from others on their thoughts. My involuntary swallowing of saliva appears to have stopped and my tongue is constantly...
  7. T

    Is this Bulbar symptoms

    Hello All, The most recent issues - my left cheek feels numb more every day along with my tongue and mouth tingling and I having some issue with swallowing saliva and it comes and goes. No other swallowing issues. NO issues with muscle strength and I work out on a regular basis...
  8. T

    Scared

    mamaoftwo, do you have any updates on your condition. My symptoms sound exactly like yours. I have thumb pain which comes and goes more on the right hand then left, Twitching in my calves but sporadically all over includiing left eye. Would love to hear from you.
  9. T

    Do I have ALS in AR

    Thanks Wright. I have never posted to ANY forum in the past so your response is very much appreciated and it helps me calm down. I am to see Neuro soon and he is to run EMG on legs as he ran EMG 4 years ago on legs as well. He ran EMG on arms in Dec 07 when one of my arms really ached for...
  10. T

    Do I have ALS in AR

    I'll try to keep this short. 4 years ago I started to have numbness, tinling in my left foot when running which would stop when I stopped. I also had some slight numbness sometime in my left hand around my pinky and ring finger and side of the hand along with a very subtle numbness in my cheek...
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