Search results for query: *

  1. B

    Suffering

    Thank you Tom'sWife for the beautiful re-introduction to Fr. James Martin. I actually had that book at one point. I will revisit it again as I pray to make some sense of my BFF's rapidly progressing ALS. Blessings to you and Tom.
  2. B

    Webinar on cognitive changes in ALS

    Excellent video. Definitely watch.
  3. B

    Article about HA-114 Probiotic

    Thank you for all the info. I asked the dietician/nutritionist at the Columbia NYC ALS clinic last week. Her reply was: "You need good food first to get the microbiome happening. Without good food in the gut, no amount of probiotics will help." Great. But true. My pALS is underweight. I'll stay...
  4. B

    PALS definitely qualifies for financial assistance. We are working on Temp Disability now, then...

    PALS definitely qualifies for financial assistance. We are working on Temp Disability now, then SSDI. Another person is handling that. I'm the medical person. Right now is covid #2 after the paxlovid. So besides digesting the diagnosis, she's suffering from covid. And a b-day tomorrow. Life is...
    • BarbaraB
    • Profile post comment
  5. B

    Hi MupstateNY! Thanks for getting back to me. I hope you get this message. The ALS Clinic at...

    Hi MupstateNY! Thanks for getting back to me. I hope you get this message. The ALS Clinic at Columbia Med NYC has gotten back to us. Appointment 2/13. This is 2 hours from us, but they seem the best group to work with. There is a lack of ALS info in my area: neurologists or primary docs. Best of...
  6. B

    Clinic issues

    M- where are you upstate? Which clinic are you at? My best friend just got diagnosed w/ ALS last week. She is trying to get into the clinic in NYC- but NO neurologist in our part of upstate (near Kingston) works with ALS! And her primary hasn't stepped up yet. Trying to find solutions. Thanks...
Back
Top