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  1. Downhillwego

    And I think she was all ready to discharge me until I rolled up my trouser legs and she saw the...

    And I think she was all ready to discharge me until I rolled up my trouser legs and she saw the obvious difference in size. Now I'm waiting for the Rona to move on and normality and a huge backlog to clear before I actually get any idea what the future holds.
  2. Downhillwego

    Last year she noted muscle wasting of right shoulder and weakness in right knee, the Brain MRI...

    Last year she noted muscle wasting of right shoulder and weakness in right knee, the Brain MRI was marked abnormal for white matter hyperintensities but after a few more MRI scans of Spine ect they were deemed incidental findings.
  3. Downhillwego

    My Neurologist mentioned 'cramp Fasciculation syndrome' as a possibility for me, although on the...

    My Neurologist mentioned 'cramp Fasciculation syndrome' as a possibility for me, although on the request for a EMG she did also mention ALS, maybe she did that as a favour so that I get seen sooner, or maybe she is genuinely concerned about it, I just don't know.
  4. Downhillwego

    Restless limbs when trying to sleep

    Its really good to hear that you can control it with stretching and exercise affected. Its been driving me crazy for a few weeks now, not just at night either.
  5. Downhillwego

    Restless limbs when trying to sleep

    Thanks for the reply, I need to go back to my doctor and have a chat with her about this. I have not spoke with her for around 6 months as she took an offence to my self medication for my thyroid problem with natural dessicated porcine thyroid, and as I'm under a neurologist I didn't see the...
  6. Downhillwego

    Restless limbs when trying to sleep

    Hi, thanks for the reply, I will have to try harder to get an appointment with my GP although it's not that easy in the current climate. I did initially try magnesium when my symptoms first appeared but didn't find it was very helpful, my levels have recently been tested and are up in the top...
  7. Downhillwego

    Hi, I am supposed to be having a EMG but it's not happening any time soon due to this virus.

    Hi, I am supposed to be having a EMG but it's not happening any time soon due to this virus.
  8. Downhillwego

    Restless limbs when trying to sleep

    Thanks for having me. Im not diagnosed with any form of MND, I'm going through the diagnosis process but it's very slow going and I've been going through the motions for over a year and now it's all slowed down even further due to covid 19 meaning the NHS is no longer doing routine testing such...
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