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Hi.Pete Praying for you. I am down to days, I haven't been able to tolerate any food since last Thursday. Breathing is very weak. Very nauseous and in pain. Ready to run to my heavenly father . This is likely my last post. Love to you and pray for a peaceful transition for you. You have...

Yay...I received my new sling this week from the Osprey sling company in England. It fits better and is much more comfortable. I was afraid my arm was going to break with the other one. The new one was 1/3 the cost of the old one. They don't ship to the US but if you have a friend in...

Hi Pete My BP is dropping as well. Last read was 86/63. I am now severely nauseous and every other day I am unable to eat. Pain levels have increased and I have had to resort to narcotics during the day. The end is nearing. When I close my eyes, besides the colors from my synesthesia...

If I wasn't so far along and I could still swallow, the only slurry I would consider ingesting is cuastm which you can get from sigma Aldrich in fairly pure form. Do your research first. Google ALS TDI copper to get more details. University of Melbourne had good results. There are...

They are bigger than a pea and amorphous, I brought them up with cough assist, really disgusting will increase fluids

I can't tolerate dairy based formulas.

I have been lowering my head more recently to alleviate pressure on my tailbone...it is a real pain in the butt. My feeds are set at 60ml an hour. I can't tolerate anything faster. I still have my head elevated regardless though not as much as before. I use the vibration settings on the...

I have started coughing up chunky stuff. I know I have scar tissue in my lungs from two bad bouts of pneumonia but I don't think that is what it is. I think it is clumps of semi dry mucus. Has anyone else seen this. It is pretty scary. Normally I cough up white slimy mucus but the...

I am with you Pete. Same thing with breathing and typing. Remember you are loved by many. Let's meet for a sumptuous dinner on the other side.

On the peptide 500 calories a box. Not sensitive to vegetable protein, i am sensitive to dairy protein. Can only tolerate 1 box daily. Om hospice so not motivated to change anything at this point