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  1. M

    So confused! Second opinion in 2 weeks

    I know--the heart beating fast is the least of my worries actually. The constant whole body twitching and vibrating, the loss of strength and weight loss, the balance issues, falls and constantly dropping things are my main concerns 😣
  2. M

    So confused! Second opinion in 2 weeks

    They have ruled out Lyme (by one Elisa test--but I wanted more in depth testing because I grew up in the woods and riding horses). They have also ruled out all autoimmune issues. My cardio doc says it's not stemming from my heart, it's something that's causing my heart to beat so fast. Seen...
  3. M

    So confused! Second opinion in 2 weeks

    Unfortunately I've seen every specialist and had every blood test to rule out other disorders. That is why I'm so scared!
  4. M

    So confused! Second opinion in 2 weeks

    That's why I'm seeking a second opinion as the Cleveland clinic isn't all it's cracked up to be. I also have tongue fascillations while my tongue is relaxed inside my mouth. Is this symptom only an ALS symptom? Sorry for all the questions!
  5. M

    So confused! Second opinion in 2 weeks

    The neuro mentioned MS, other neuromuscular disorders, ALS, and I said it could be late stage Lyme but no one wants anything to do with that for some reason. I have a spinal tap set up and dr says she won't diagnose me til that is done. I drop things a lot, it's very hard to write, and I fall. I...
  6. M

    So confused! Second opinion in 2 weeks

    By the way this was all from Cleveland clinic dr and one that I just saw mentioned in another thread! I hate the clinic! Going to UH for second opinion!
  7. M

    So confused! Second opinion in 2 weeks

    Hi everyone! I'm new here and scared. Below is a list of dr diagnoses I've gotten--yet no one firm diagnosis yet. Any insight? 1. Weight loss 11/1/14 162 lbs, 11/10/15 120 lbs--without trying. 2. No reaction to babinski test 3. Abnormal Rhomberg 4. Few beat ankle clonus bilaterally 5. Bilateral...
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