Search results for query: *

  1. O

    Research- recording memories and messages for children

    Hello everybody, My name is Olly and I’m currently a PhD Researcher at Edge Hill University in Ormskirk, Lancashire (UK). I have a specific research interest in young people who help care for family members who have ALS, and also those young people who are bereaved due to the disease. I have...
    • Olly2015
    • Thread
    • als children conversation dad diagnosed digital family information legacy planning research video young
    • Replies: 0
    • Forum: Research and trials
  2. O

    Creating a digital legacy - video messages for children

    Pleased to meet you T.Low! I'll be sure to have a look at Steve Gleason's work, thanks for the heads-up! Hope you're well, Olly.
  3. O

    Hi there, Thank you for taking the time and interest in my study. Please feel free to contact...

    Hi there, Thank you for taking the time and interest in my study. Please feel free to contact me regarding anything through the research page (www.facebook.com/mndlegacy) or via email [email protected]
  4. O

    Creating a digital legacy - video messages for children

    Hello everyone, I'm a PhD researcher from the UK looking at the use of digital legacies with people living with ALS, and how the legacy is used by children in their family. Although there are lots of different types of digital legacy, I'm focusing on a purposefully recorded video-based legacy...
  5. O

    Participate in ALS research? Children in your family?

    Hi all, My name is Olly and I lost my Dad to MND/ALS a few years ago. He was diagnosed when I was 7 and died when I was 14 so much of my childhood/teenage years was spent caring for him before then dealing with the bereavement. I am now carrying out a PhD/doctoral study to investigate a way of...
Back
Top