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    Achthar updates?

    Just curious if anyone knows how the trial is doing. Dad would've started the trial had he not fallen. I always wonder where my dad would be now if he never fell.
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    My dad has Victory with Jesus

    My dad passed peacefully at 9:15 on 5/21. My brother, mother and myself and were with him. I curlled up with him and held him till he passed. My dad had 15 months after diagnosis but fought the good fight. Broussard's Mortuary, Funeral Home, Cremation Services - Southeast Texas
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    The hardest thing

    As I sit here watching my dad I cant communicate with him. I had some grand idea that he would have written me a letter, something. My dad always wrote sweet notes in my birthday and Christmas cards and I figured he would have written me and my mom and brother. I just wanted some grand...
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    4/22 marks one year

    Since we first heard "I think this is ALS", "2-5 years", "terminal" in reference to a single twitch in my dads bicep. Today, he has just a short time left. This entire year has been a blur. I've told people I feel as if I've lost an entire year. I still look back and wonder how we got here...
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    Pain at the end

    I know we are close, a few moths, maybe weeks. Dad is napping more, can't hardly communicate. He's having headaches, jaw pain and shoulder pain lately. He's on methadone and takes morphine occasionally. He hates morphine because he doesn't want to be out of it and I respect that but I also...
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    Power Outages - what to do?

    So, I guess we never thought this one through but my parents lost power for 6 hours today. I had no idea his hospital bed goes completely flat during a power outage. Dad can't lay flat or he can't breathe so we put him in a chair but that's only good for awhile so once he went back to his bed...
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    Pity Party for one

    Im just having a bad few days and need to vent. My dad is in the final stages and barely able to communicate but clearly made the comment today "I'm ready to die now" when my mom told him she wished he would use a Bipap so he could breathe easier. I know he's ready, it's just hard to hear...
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    Pain at the end?

    Dad is home on hospice from his brain bleed and his head is better but his muscles are killing him. Is this normal? It is killing me that the morphine isn't working. They've added Methadone to his treatment plan but we are to scared to try it. I just want to take his pain away. It's slowly...
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    We are back in the hospital

    Dads Subdural hematoma is worse and we are back in the ER. I'm praying God takes him so his suffering can end. This is horrible.
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    Bouncing back after an injury?

    My dad fell on Friday and developed a subdural hematoma and was in the hospital for 5 days. He lost so much strength that I fear it won't come back. He is having PT and Home Health coming in but he's gone from needing some assistance to a 158lb floppy baby. It's heartbreaking and he's already...
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