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  • Users: Monky
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  1. M

    Small pupils near the end

    Hi everybody, Some of you know my father past away three weeks ago... my... has it been that long already? It still seems unreal, especially now I'm back in Holland. Well, I can't stop replaying the last view weeks of my fathers life. Just can't help it. It's usually during the night or in...
    • Monky
    • Thread
    • back dynavox early eyegaze father life night problems work
    • Replies: 7
    • Forum: Current caregivers
  2. M

    Thank you

    We want to thank you all for you kind words of comfort (see In Memorium). Soon I will write a little bit more about his whole trial this year, what our sollutions were for the problems that came up and the progression of the ALS. I hope that the people here who care for someone with ALS or...
  3. M

    Father passed away

    Hi Everybody, On 1 Januari 2011 our father passed away at the age of 68. He was diagnosed in February with ALS and has passed through all the stages of this illness very very fast. There was hardly time to keep up. Some of you helped us with ideas to keep his head straight when he suddenly...
    • Monky
    • Thread
    • age als bipap breathing breathing problems brother christmas dad diagnosed eyes family father fear finger grant ideas immediately morphine night oxygen problems stages worried
    • Replies: 20
    • Forum: In memory of
  4. M

    Scared about my dad's breathing

    Hi Everybody, I just got some disturbing news from my brother about my dad... I'm just not sure how disturbing it is... During the night my father had shortness of breath episodes. He has had this 4 times now. The nurse that comes in every day said she would talk to the neurologist. His...
    • Monky
    • Thread
    • age als bipap breathing brother christmas dad father mucus neurologist night respiratory scared shortness of breath swallowing ventilator
    • Replies: 11
    • Forum: Current caregivers
  5. M

    Neck support

    Hi Everybody, I will first tell you about our situation first. I am Monique and I live in Holland. My dad and brother live in the US and my dad has ALS. At this point he can hardly talk, can't stand, can hardly use his arms and hands, and this all happend within a year. He is going down faster...
    • Monky
    • Thread
    • als breathing brother christmas clinic cry dad depressed falling father hope life neurologist pain possible a problem support work
    • Replies: 12
    • Forum: Current caregivers
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