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Noah benShea is the ALS Association's National Laureate, he lost his father to ALS. He is a poet, philosopher, and wonderful. Please take a look at this site, he has recorded his thoughts and it's wonderful to listen to. God Bless all of you dealing with this disease; I lost my sweet husband...

Great! I'm so glad that you had such good news at the doctor's! A vent without a trach sounds wonderful too. Maybe we'll have a cure before long. I'll keep praying! Michelle

Teej, Considering your husband's young age and the fact that you have young children, the vent may be a good option for him. My husband was 61 when he decided to go on the vent, he had been diagnosed for about 18 months with the bulbar form of ALS and he went into respiratory failure. The vent...

Hello All, My husband died of ALS six months ago and now his brother has been diagnosed. Our grown children are now faced with the same question to be tested or not. All have agreed not to be tested, to increase their life insurance, to take out long term care insurance, and to live their...

Lillie, I don't mind you asking anything at all if I can be of any help. My husband went into the hospital after having his trach changed out (he used the disposable inner cannulas and the trach itself required changing frequently) and it began to leak air. While in the hospital, he began to...

Feeding tube and vent Hello, I'm new to this forum. My husband died in February after living with ALS for three years. I've been reading your messages about feeding tubes and vents and the patient's wishes, and that's what is most important. The person must decide for themselves as to what...