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Immediately. Your neuro doesn't know what he/she is talking about. Get the pulmonologist from the hospital to set the neuro straight.

You should most definitely contact FDA and FBI. The FDA has a website where you can report all the information you have. These harmful practices must be stopped and the perpetrators jailed.

There should be an "Any" option on the Distance question. I know you can set that in the results page (which has a few Advanced Options as well).

Unfortunately true. The idea behind not taking people on vents and/or over 2 years post-Dx is to weed out fast and slow progressors in order to minimize the statistical noise. Even with those constraints, the statistical noise in ALS is extremely high. That's been bedeviling trials since the 60s...

Very curious. PM me your answers to all the questions and I will pass it on to the developer group. I know there have been some issues with the database server barfing on some input combinations.

"Pre-filtering"? If you mean making sure results shown are relevant, then perhaps. People constantly complain that clinicaltrials.gov is very hard to parse. Antidote is trying to make relevant trials easier to find and enroll in. Originally they were focused on cancer but after I wrote asking to...

A better resource is Antidote, formerly TrialReach. They have been excellent partners in being a resource for PALS. Just fill out a few questions and you will be presented with the relevant clinical trials within a radius you specify.

This short book was written by my friend Jef Akst. She researched the issue for a couple of years after doing an article with me about DIY drug trials for The Scientist magazine (for which she is a senior editor). The story talks about the OSC (Oral Sodium Chlorite) program which I developed as...

Records which he cannot use for a public review so they might as well not exist. Provide me with some proof of your claims or my assessment, based on all the publicly-available facts, stands. Why is that such a difficult concept to grasp?

When you are deliberately misstating the truth or saying something false, you are lying. So stop lying to try to bolster your point. I am tired of having to repeat my very simple proposition. And I am indeed extremely angry that you blind fanatics have taken this to the point of threatening a...