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  1. P

    I had another clean emg, but my symptoms are still slowly getting worse so I don't know. How...

    I had another clean emg, but my symptoms are still slowly getting worse so I don't know. How have you been?
  2. P

    No updates really. It got moved to virtual again due to covid. I scheduled an appointment at...

    No updates really. It got moved to virtual again due to covid. I scheduled an appointment at northwestern for early February and have an emg scheduled for about 2 months from now. How have you been?
  3. P

    Scared and confused

    I'm seeing a psychologist to help with that and have started medications. You're right that no matter what else is happening, anxiety is ruling my life right now. I have my bloodwork and MRI scheduled for the next few weeks and then another clinical exam with the neuro at the end of december...
  4. P

    Scared and confused

    I just had my 2 month followup with my neuro. It unfortunately had to be remote due to covid so not as extensive as I would have liked. He gave me a couple tests for strength (walking on toes and heels, squatting down and standing up, etc.), looked at my tongue and checked my face in a couple...
  5. P

    Hello, I have a similar story to you. Did yours start in every muscle at the same time or is it...

    Hello, I have a similar story to you. Did yours start in every muscle at the same time or is it just that it has now spread everywhere? Also are some muscles worse than others or are they all pretty much equally weak?
  6. P

    No, mine is slowly getting worse. Are yours feeling any better?

    No, mine is slowly getting worse. Are yours feeling any better?
  7. P

    That's great news! How are you feeling now?

    That's great news! How are you feeling now?
  8. P

    Nothing yet, just seem to keep slowly progressing. I have my next neuro appointment Nov 23 so...

    Nothing yet, just seem to keep slowly progressing. I have my next neuro appointment Nov 23 so we'll see. How about you? You said you have an emg today?
  9. P

    Hello, your story sounds a little like mine. I was sick for a few weeks in August then started...

    Hello, your story sounds a little like mine. I was sick for a few weeks in August then started experiencing muscle twitching and weakness after. Does your trouble walking and swallowing come and go or is it constant?
  10. P

    Scared and confused

    Yea, I definitely have not been sleeping well this year and particularly since all this stuff started. I usually wake up at least 2-3 times in the night if not more and often have difficulty going back to sleep due to the fear. Unfortunately, my first move was what you suggested, to go back to...
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