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  1. M

    Intermittent Fasciculations

    First of all I would like to apologize Nikki J as I didn't realize there was a difference between threads & posts which means I have tried several times to start a new thread which have been deleted. Again, my apologies! Second, I was wondering if anyone is aware or has experienced...
  2. M

    Intermittent Fasciculations

    I have been diagnosed at this point with definite Upper Motor Neuron symptoms (spastic, increased reflexes & increased tone) which in my case started a little over 2 years ago. About 1 year in I started with Intermittent Fasciculations which now are more frequent and at this time mainly on the...
  3. M

    Intermittent Fasciculations

    Thank you Atsugi and I guess only time will tell with the issue with the fasciculations as they are new for me! Thanks again!
  4. M

    Intermittent Fasciculations

    Hello and thank you for your reply! I have asked the neurologist and all he said was "MND". The symptoms I have are spasticity in arms & legs, trouble with my fingers, my strength is just starting to go, etc. I have not rec'd an "official diagnosis", however, there has been speculation due to...
  5. M

    Intermittent Fasciculations

    It has been awhile since I have posted! I started my journey a little over 2 years ago and it has been verified that I do have Upper Motor Neuron issues, however, my question at this point is I realize there is a "time frame" for ALS (about 15 to 18 months from the start of symptoms) but I have...
  6. M

    Scared it may be ALS

    Hello again, Well I'm back yet once again! I was informed by the team of the ALS specialist that it is not off the table as of yet and still a possibility. Several days after I received this information I received a copy of the report. The doctor stated there is atrophy on the tongue and he saw...
  7. M

    Scared it may be ALS

    Hi Nikki and Ottawa Girl, Thank you both for your quick responses! In regards to asking about ALS, I was exhausted, being rushed out the door to get the bloodwork, and the doctor was gone after the referral! I did however send him an email with All my questions and hope he does respond or...
  8. M

    Scared it may be ALS

    Oh yeah, the ALS doctor asked me if the other 2 neurologists had me take an EMG tests several times and I stated no and yet he also did not request one. Also he asked if they indicated any type of diagnosis and other than the b12 def. neuro who insisted I would be cured by now taking the super...
  9. M

    Scared it may be ALS

    Hello again, Well I had met and been examined by the top ALS specialist at Columia University in NY yesterday and he also had some blood work drawn (I did not get a chance to the what tests were requested), however, ALS never was mentioned at all. The doctor referred me now to a Movement...
  10. M

    Scared it may be ALS

    Elaine, Thanks for the quick reply as I greatly appreciate it! I wasn't aware that neuros have different areas of expertise! I guess this is also a journey of learning because in all honesty, the doctors sure as heck don't explain anything in the area I live in and I hear this from almost...
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