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  1. J

    I need everyones input, please! I am scared, tired, and frustrated.

    Sounds lots like my case,you got a long road ahead. My anxiety and depression are in check ...my symptoms are still going strong. I also twitch after flexing a muscle,I don't think thats ALS specific. The neuro referred me to the psychiatrist,now the psychiatrist refereed me back to the neuro ...
  2. J

    Bulbar onset questions and concerns.

    Neuro appointment tomorrow
  3. J

    Bulbar onset questions and concerns.

    I been off the forum for months. Been on "treatment for more then 20 months,pills,therapy,massages,exercise,salt baths,etc,etc...nothing seems to improve. Taking anxiety depression meds for more than a year plus therapy. I hope this is all a mind trick and nothing more.
  4. J

    Bulbar onset questions and concerns.

    Hi,I been seeing him for the last few months. He prescribed some sleep med and something for twitching.
  5. J

    Bulbar onset questions and concerns.

    Maybe the bulbar symptoms are the weakness? Btw they're pretty scary.:?:
  6. J

    Bulbar onset questions and concerns.

    Hi,I been seeing him for the last few months. He prescribed some sleep med and something for twitching.
  7. J

    Bulbar onset questions and concerns.

    Btw 38 yrs old male. Normal clinical exam.
  8. J

    Bulbar onset questions and concerns.

    Hi,I been having symptoms since about 26 months. Last EMG done 2 months ago,was normal got diagnosed with BFS. Ok,symptoms keep going south, weakness Not clinical but i can tell difference.( perceive?) Slurred speech,voice change ,twitching face,neck,tongue. Tongue feels heavy ,pain on back of...
  9. J

    40 year old - worried I may have ALS

    Any updates?
  10. J

    Doctor told me it is not als

    Hi, you got positive ANA test.?
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