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  1. N

    The end

    Today I had a major setback as both my legs and trunk stopped working, just like that'. Also my breathing muscles are almost completely paralyzed, I have a catheter and briefs as I can't get out of bed. I've decided enough is enough. Early next week I will be checking into the hospice house...
  2. N

    Diagnosis now confirmed.

    Actually I disagree that it's better to know. That's true for a disease with even a 1% chance of treatment. For this diseases, ignorance is bliss.
  3. N

    TCM Hospital in china

    The best I've heard of riluzole is that it can extend life by 3 months, IF it's started at disease onset. Now how many years go by before the avarage person is diagnosed with ALS? I repeat, if this kind of progress was being made in cancer research there would be riots in the streets.
  4. N

    TCM Hospital in china

    Ur hospice nurse said to insert syringe, pull up on it to see if there is residual, then flish with water. It's worked every time
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    TCM Hospital in china

    Honestly one ineffective drug in 20 years? Imagine how the cancer lobby would be screaming if that were the case with them
  6. N

    TCM Hospital in china

    Both neurologists who run the Houston ALS clinic said not to waste your money on riluzole
  7. N

    TCM Hospital in china

    Riluzole is a bad joke
  8. N

    Goodbye to all

    Very appropriate poem BK. I have often called this disease hell on earth, I have no desire to see what's cooked up in the real thing
  9. N

    Goodbye to all

    Can't control my hand very well sorry for the misspells
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