Recent content by worriedJo

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    Dr Google ruined my life: A manifesto (To everyone who thinks they might have it)

    I’m ‘there’ right now… I’ll see a neurologist next week. I’m absolutely scared. I’ve done the Google search. I’ve been told in this forum that my symptoms do not sound like ALS, but then a read a little more and I find one or two ALS cases that started with spasticity and loss of strength in...
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    Having a really hard time - afraid of ALS

    Thank you so much to everyone that has responded. I have read the ‘stickies’. I understand this is not how ALS usually presents. But I also learned that this disease is so different for each patient and it can be so different in starting symptoms and progression… When I say it goes away and...
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    Having a really hard time - afraid of ALS

    I’m 40 years old. I'm having a really hard time. I haven’t shared my fears with anyone, so far. I have an appointment with a neuro in 2 weeks. I keep repeating to myself what I've read several times around the forum: “ALS is about failing, not feeling”... And so far, there is nothing I 'can't...
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