Recent content by vickim

I have a flash drive in our truck with 600 songs on it and several are Frank. There is also The beatles, John Denver, Aerosmith, Def Leopard, Dolly, The spinners, Bon Jovi, Penotonix, Lynard, Queen, Billie Holiday, Styx just about all kinds, Music sooths the soul.

Well life has gotten in the way. Trying to stay safe. Got vaccinated so I am a little more inclined to get out. Still wear a mask and my cane makes it easy to keep others at a distance! LOL. Still camping and fishing though. I think of all you all the time. I pray for all of you. I will try and...

I haven't posted here is a long time. I am glad to see that some are starting to see the similarities in these diseases. I am 14 years into mitochondrial myopathy complex 1 and 3 adult onset. It is robbing me of muscle, eye sight, hearing and energy. I have nerve damage too. There is no cure...

Buuurrrrr its cccoollddd outside !!

Riddle: What is the worst vegetable to have on a ship? Answer: A leek(leak). Riddle: Why weren't the tennis players allowed in the restaurant? Answer: Because they make too much raquet. Riddle: What did Sir Lancelot wear to bed? Answer: A knight gown! Riddle: How do monkeys make toast...

Happy New Year Frank !! Hope you are doing ok. Just wanted you to know I am thinking of you.

Thinking of you....hang in there mr. funnybone !!

I hope you get some answers soon. It doesn't do much as far as cure but it helps to know what is wrong and that you aren't crazy. Look me up on FB if you want to. Vicki Moody.

I did some research on those antibiotics and there is mention of them changing some peoples dna. No difinite proof though. I think my progression is slow compared to some. Fatigue and weakness is my biggest complaint. See if you can get a muscle biopsy.

genetic testing came up with the glutaric aciduria. My mito is caused from environmental....I believe it is from being levaquin and cipro (antibiotics). I take a mito cocktail consisting of Q10, multi vitamin, super B complex, levo carnitine and mestinon. I have good days and bad days. Bad days...

Hi, sorry it took so long for me to answer. I don't check in much. I am 11 years into the mito disease. I have mitochondrial myopathy complex 1 and 3. Possible glutaric acduria 2. IT took 5 years to get my diagnosis. I ended up at a university hospital with a MDA/ALS clinic. They did a muscle...

Release.....Ready everyone laughingly even after some escaped. Discuss

value in old, links in new Hopper is next word

I am now lactose intolerant so I have had to get creative. My hot chocolate has powdered coconut milk, cocoa and sugar and pinch of salt. My favorite hot tea is a good chia tea or peppermint right now. Favorite iced tea is a green ginger peach tea. It is refreshing.

I had my coffee with white chocolate raspberry non dairy creamer. I made some dairy free hot chocolate mix the other day that gives me the creaminess I love with that drink. I can only have wine when I skip the meds. But I do that once in a while and it is so good. I love breaking the rules...