Recent content by ThroughThatValley

Tom as of yet you dont have the hallmark symptom of als wich is clinical distal weakness or bulbar involvment. These two fellows who label themselves doctors and who just infused the sums of all fears into you are irresponsible folks. I mean, a psychiatrist looking at fasciculatons and comming...

Because of regional issues I can't access this content. Can someone give me info about it? Is it ggod news? Thanks à lot!

Hi Kevin. Let's do some basic physiology here. The eardrum muscle is not a voluntary muscle. You can't use it at will. It will respond to a sound that could impair your audition and close up the earcanal by sheer reflex. MND affects motoneurons, aka voluntary muscle function. I really don't get...

I'm very very sorry you had to find us, and that you're in the dead zone right now where the diagnosis is still pending. It's probably the worst place to be. If it can help, just know you'll ajust to whatever outcome. Even if the dx is confirmed, and after a crazy emotional rollecoaster, you'll...

Dear friend, thank you for the feedback. The waiting game is the worst. I'll advise you to try and relax until you hear back from the neurologist. Take it one day at the time, one hour at the time if needed. Focus on sport, outdoors, seeing friends and work. Give the twitching a shrug when you...

Dad, you really have to let go. You don't have it, while members here who take the time to respond are struck with that plague or caregiver for people dying from it. Your age, your symptoms, and moreover your clean clinical exam AND clean EMG make you an ALS free person. If you're having...

Hi there. Four limbs weakness (percieved) points away from MND. Twitches are irrelevant without the hallmark presentation that is real weakness. If the motoneuron unit feeding your thenar muscle wat dying off and the latter already presentating real atrophy your hand function would be badly...

Labs are in no hurry. There went frenzy for AIDS because as HIV began its war againt men, everyone and their uncle had a Black Death scenario fit and money was not the issue. Labs gathered their informations and States payed every mean and need for them to try and find a cure. ALS is not...

...that one day doctors will ever say to a patient: "don't worry, it's only ALS". Or is this disease continue to plague and despair the human kind for hundreds of years to come?

Sadly it appears that this protocol, even if proven efficient, will not provide help for Pals already diagnosed. If I read it correctly, more than five years, at best, will come and go before any patient will get full access to the drug. How many of us here speaking will still be in the position...

The use of the word "compassionate" coming out from up there in Big Pharma land is the most cynical move they've ever made. There's nothing that far from compassionate than labs and the money grinding wheels of their business.

What my neuro told me differs a bit. He said new MRI machines can cast light on brain activity to such an extent that you might actually have hypersignals shown that could look pathological when they are just physiological. Sometimes too much power is just too much to sort out the good from the bad.

Yes, thanks for the tip. I already vape pot. I prefer the plant whole rather than CBD extracts, and I don't mind the psychoactive effects of THC. Not the most 'legal' way to consume, but frankly, I'm beyond these considerations. Merci à toi, au plaisir de te lire.

So great! Please, please, don't let the ugly face of health anxiety into your house again. It might be knocking on your door time and again, because you'll stay alerted, that's how HA works. Just ignore the knocks, don't test your strenght, don't look for atrophies that are only in your mind...

Good luck for your second opinion run. What you describe could well be a mix of stress, self persuasion and a mild neuropathy. Appetite loss, fatigue, and percieved limb weakness or swallowing issues could be mere anxiety (there's a condition called globus that mimics dysphagia when there's...