Recent content by shackney

Swtflwr, Sorry to hear about your mother's diagnosis. My father was diagnosed three months ago. We have come to find that the most important ally in the fight against ALS is a positive mental attitude -- which is more than just words, because the disease can really have an impact on psyche as...

GRP, For the record, I think the common sentiment that Bulbar ALS is "worse" than limb onset or that the prognosis is shorter is based on complications that arise from speaking/swallowing difficulties, not disease progression. I am not a neurologist or even a doctor (I am, ahem, a lawyer)...

Hang in there Dana, If it is not too much of an imposition, I would love to hear updates on how your Dad does and I will be cheering for him all the way. My Dad has bulbar and is likely to face the vent decision at some point in the future. I very much hope that he opts for it. If your Dad...

Hang in there Stacey -- As you work through this hard decision, you might take a look at tpals.org -- a great website that details real stories -- turning points in ALS. There are a number of stories on there that are about going to vent. The ventilators of 2006 are amazing. The LTV 950...