Recent content by Sammbie

Thank you everyone for all your responses, they're very much appreciated. I will push harder and keep on until I get somewhere. Thanks Wendy, I've been told the waiting list for neurology in my area (Shrewsbury & Telford) is 18 months. I did go out of area but seems like they are short too...

Hi Karen, Thank you for your reply. I've been told by my GP that there is a national shortage of neurologists and none in our area. The joys of the UK's NHS. I just have to wait it out and try not to worry too much. Most days I just get on with it because I have to but on those odd days...

Hi Everyone, It's been a while since I've last posted and not a lot has changed since (diagnosis wise). I really don't want to bother you with a huge list of symptoms, nor do I want to come across like a huge worry wort, when my concerns are many of your realities. So I'll try and keep it as...

Hi again, I've been busy trying not to think too deep about my health since my last post. Slightly more progression in my hands, in particular the left and in the left leg. I'm dropping things on a daily basis now and can't turn my front door key with my left hand anymore. Still not had the...

Thanks Wendy, That's what I am finding hard is to achieve that balance. I'm a single mom of 3, aged 12, 9 and 8, we've already had 4 tough years through DV and stalking. We also have a 10 year restraining order to prevent dad contacting us. At a time when I should have been piecing our...

Hi everyone, I posted a little while ago (March, I think). I was waiting for my EMG, which I had on the 1st April. Since my last appointment with my neurologist my symptoms progressed some more, more weakness and atrophy in left foot and hand and a cluster of pyramidal signs. Due to the...

Wendy, Thank you so much, some very practicable and doable advice, whilst it seems simple currently I'm struggling to see the wood from the trees. I will start the self referral process and ask the GP in regards to physio. Anything that helps whilst waiting will be a blessing. I really hope...

Hi again, I posted a month or so ago and have been waiting for further tests and trying to just get on with things in the meantime. This is really a question for anyone who understands the UK's NHS system, I was in a UK group but seems I've lost the access to post. I have neurological signs...

Thanks Lenore, I sincerely hope you and Mike are right. The severe pain is now gone, MRI indicated inflamed nerve roots causing neuropathy pain. Black out's where a side effect of gabapentin I took for the pain. All had cleared up now. I hope those cards turn a good hand for me, I'm...

Hi, I've been trying to keep my mind occupied since my neurology appointment last week. Not all that difficult when work are kicking off about my appointments. In a bizarre way it's an unpleasant distraction. I'm waiting for a nerve conduction test and an EMG and other than particularly...

Apologies, please ignore that last question. Think I'm letting the worry get to me a bit. Let's hope it's a simple case of carpal tunnel syndrome.

Hi, back again. Firstly I want to thank you all for your support and advice and as in my previous post I've been trying hard to keep occupied and my thoughts in a positive mindset. I've had my appointment moved forward to this Monday which is fantastic, especially for the NHS. With it being...

Thanks Nikki, I'm adopting a positive mindset until I know what I'm dealing with. Thankfully in the long scheme of things there's not that much longer to wait. I'll drop an update when I know more. Thanks to you and everyone else who replied. Sam

Hi Mike, Thank you for taking the time to reply, it's really appreciated. I have tried to put my fears aside and keep up with my everyday routines. It's due to the my demanding scheduled is become really apparent how much weaker I've become. I have been back to the doctors and they've started...