Recent content by rajiv

  1. R

    Eyes pain when open

    Yes unfortunately that is what I am saying. \rajiv
  2. R

    Eyes pain when open

    Hi, My Mom is in very advanced stages of MND since being diagnosed in 2006. All muscles have failed but mentally she is a sharp cookie and a true fighter. The maximum she can do now is open her eyes but is unable to close them on her own. We have to use some sort of medical sticking tape on...
  3. R

    trach/vent questions

    Hi Grp, Just testing ... looks like my posts are not showing up on the forum. So just trying a short one ... \rajiv
  4. R

    trach/vent questions

    Hi Grp, Maybe posting a third time is a charm ... thus far the post has not shown up. I can really understand the pain your Dad is going through. Having gone through some very tough last three and a half weeks where our family has had to take some tough decisions I know how you feel too. My...
  5. R

    trach/vent questions

    Hi Grp, I have tried to post this reply a couple of times since yesterday but it has not shown up on the forum as yet. Trying once again ... I can really understand the pain your Dad is going through. Having gone through some very tough last three and a half weeks where our family has had to...
  6. R

    trach/vent questions

    Hi Grp, I can really understand the pain your Dad is going through. Having gone through some very tough last three and a half weeks where our family has had to take some tough decisions I know how you feel too. My Mom was initially very negative when things really got a lot worse three weeks...
  7. R

    BiPAP vs. Invasive ventilation

    Thanks very much Hi Mike, Thanks very much for your perspective and pointers. We have decided on getting a trache. Currently she is intubated and once we are confident that she is stable, we expect to do the procedure in a day or so. By the way, since the respiratory arrest two days ago, as...
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    BiPAP vs. Invasive ventilation

    Hi, My mom in India was diagnosed with MND in Sep 2006. It started in her abdominal muscles, spread to the back and legs. Her speech is not slurry but has lost its volume. She speaks clearly but with a very very low volume. She can still swallow but has started to have trouble breathing...
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    trach/vent questions

    Hi Michelle, I read you post and thought you may have some input for my query. My mom in India has MND and it has now started to affect her breathing. She recently went into respiratory failure twice and was intubated and stablilized. Despite a lot of objection from our doctors, we are...
  10. R

    New? Introduce Yourself - Say Hello

    Hello there Hi, Just signed up and thought I would say hi. My mom in India was diagnosed with MND in Sep 2006. At this point has lost most muscle strength in her legs, back and abdomen. Speech is almost gone and is now having trouble breathing. Right now we are looking to make some...
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