Recent content by Pecksco

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    my tobii gets very erattic soon after a typing session. I Can't focus on a letter because of...

    my tobii gets very erattic soon after a typing session. I Can't focus on a letter because of this constant bounce. tobii's explanation is tired eyes. any ideas?
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    Radicava results

    glad to hear some results.
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    Radicava results

    This thread was closed after one month. I don't know why but I'm sure there's a good reason?? There was very little results on this thread, as i expected. Radicava good news is hard to find. There's a lot of profiteers pushing this..........ALS Association news has this drugs add's on there news...
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    Radicava results

    Jay Q...........I'm confused...You switched to Radicava? That is also called Edaravone. Unless Japan is different It's one drug.
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    Radicava results

    Please Tell us more about your results...arms,legs, fingers, speech?
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    Radicava results

    I disagree with the editors of my new thread. I have read all the Radicava threads that contain a lot about the trials and tribulations of taking this drug. What is wrong with a thread that is asking a direct question.......Have you had any improvement after taking this drug? A newcomer may go...
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    Radicava results

    This new thread's purpose is to document results after taking Radicava.
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    News! Edaravone in Canada

    i have seen no forum reports that would encourage me to take edaravone. Not even close to a golden egg. Japan study .....boondoggle.
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    Limb progression

    If you are stumbling or walking with 2 canes......You are going to fall! Don't let stubbornness put you in the hospital. Move to a walker.
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    Why do so many doctors seem unaware of connection between foot drop. and ALS?

    Drop foot was my first indication...I was rehabbing from bi-lateral knee replacement when foot started dragging. Orthopedic doc sent me to nuro and after 3 EMG's and 2 months...ALS. I fell several times but i didn't hurt my hard head.....I broke my NECK. I was using my putter for a cane and I...
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    Will my legs ever get "quiet?"

    Thank you.......I'll try that
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    Will my legs ever get "quiet?"

    I'm 3 years diagnosed and this last year i have had excruciating paint in my feet during sleep. Wakes me up with Hot, burning on the top of my feet and sometimes the toes. This usually sets off my long time "Restless Legs" and all that is very painful. Short term elevation and massage is only...
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    Have you started Radicava? Use this thread to discuss experiences with receiving radi

    I know we are all desperate but where are the positive results that encourage us to take this drug?.....Asia ...Ha!
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    Have you started Radicava? Use this thread to discuss experiences with receiving radi

    I've read them all too.....looking for ANY kind of improvement. I read where 1000 patients are being infused......Shouldn't we hear about ANY kind of improvement. We don't even know how the few Asian patients are doing NOW. A drug that slows progression but nobody knows...... how much? This...
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    Progression.... ?

    Mine shrunk too. I have to use a p-cup and if the turtle will not come out ...it's hard to point.
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