Recent content by Myscootch

First of all I would like to apologize Nikki J as I didn't realize there was a difference between threads & posts which means I have tried several times to start a new thread which have been deleted. Again, my apologies! Second, I was wondering if anyone is aware or has experienced...

I have been diagnosed at this point with definite Upper Motor Neuron symptoms (spastic, increased reflexes & increased tone) which in my case started a little over 2 years ago. About 1 year in I started with Intermittent Fasciculations which now are more frequent and at this time mainly on the...

Thank you Atsugi and I guess only time will tell with the issue with the fasciculations as they are new for me! Thanks again!

Hello and thank you for your reply! I have asked the neurologist and all he said was "MND". The symptoms I have are spasticity in arms & legs, trouble with my fingers, my strength is just starting to go, etc. I have not rec'd an "official diagnosis", however, there has been speculation due to...

It has been awhile since I have posted! I started my journey a little over 2 years ago and it has been verified that I do have Upper Motor Neuron issues, however, my question at this point is I realize there is a "time frame" for ALS (about 15 to 18 months from the start of symptoms) but I have...

Hello again, Well I'm back yet once again! I was informed by the team of the ALS specialist that it is not off the table as of yet and still a possibility. Several days after I received this information I received a copy of the report. The doctor stated there is atrophy on the tongue and he saw...

Hi Nikki and Ottawa Girl, Thank you both for your quick responses! In regards to asking about ALS, I was exhausted, being rushed out the door to get the bloodwork, and the doctor was gone after the referral! I did however send him an email with All my questions and hope he does respond or...

Oh yeah, the ALS doctor asked me if the other 2 neurologists had me take an EMG tests several times and I stated no and yet he also did not request one. Also he asked if they indicated any type of diagnosis and other than the b12 def. neuro who insisted I would be cured by now taking the super...

Hello again, Well I had met and been examined by the top ALS specialist at Columia University in NY yesterday and he also had some blood work drawn (I did not get a chance to the what tests were requested), however, ALS never was mentioned at all. The doctor referred me now to a Movement...

Elaine, Thanks for the quick reply as I greatly appreciate it! I wasn't aware that neuros have different areas of expertise! I guess this is also a journey of learning because in all honesty, the doctors sure as heck don't explain anything in the area I live in and I hear this from almost...

Oh yeah, I forgot to mention the second neurologist stated, "he does not have the ability and is not equipped to deal with this type of situation" and than made the referral, hence the confusion as I would think a neurologist would have dealt with such situations?

Hello again, I was wondering if anyone may be able to answer a question I have? I went to a second neurologist and I must say he was extremely thorough, however I am a bit confused as he referred me to the top ALS person at NYC Columbia University versus doing any other tests like an EMG or...

Hello Elaine, Thank you so very much for your response as it is extremely uplifting to me! I am trying to work with a few of my neighbors/friends at this time but as you probably already know the things that are going through my head of properly taking care of my responsibilities is extremely...

Hello Again, Well after seeing the 2nd neurologist, he did inform me that the B12 was very slightly down but still within normal range and would not be causing the issues explained neurologically. Just a note that the first neurologist sent only his report (his opinion) and also put things in...

Hello, Thank you for your quick reply! I have the new appt on 7/26/13 as I really do not trust this first neurologist and since he refuses to explain anything to me about anything I am very thankful for this new appt. I do have some other symptoms that are not as prevelent at this time but I...