Recent content by meredithcreation

I think a friend went with her to the appointment, but someone her age and I don't know if she sat in or just drove her downtown. I don't know if Judy would feel comfortable with me coming with her in the future, but I can make the offer if she seems interested/amenable. She doesn't want to...

Thanks to all for the feedback...I would hope that Dr. McClusky wouldn't say "it's ALS" unless he was certain, but at the time he first said it, Judy had not had an MRI of the brain or some other medical rule out stuff. He may have mentioned PMA and Judy was too overwhelmed to catch it, but...

She has seen Leo McClusky at Pennsylvania Hospital. She says he's very nice and all, but I'm less than impressed with the medical rule out he has done before concluding that she has ALS. The rheumy suggested a nerve biopsy and he said he didn't want to do one. He did start her on Riluzole...

Hi all, I'm Meredith and I'm trying to help a dear friend get an accurate diagnosis. I happen to have a daughter with a neuromuscular disease called Bethlem Myopathy and I have found that the best information often comes from other people going through the same thing.... My friend Judy is 70...