Recent content by Madeline

  1. M

    Getting worse, worried about respiratory onset

    Hi everyone, I promised myself I wouldn't come back here after the last time I posted unless I got significantly worse, and here I am, I guess. I very much so appreciate your time as always. (previous threads here and here) I'll give a bit of a recap of my history, I'm a 21 year old who has...
  2. M

    Update: - breathing has gotten much worse, constantly feel starved for air, x-ray of lungs was...

    Update: - breathing has gotten much worse, constantly feel starved for air, x-ray of lungs was normal - intercostal muscles fascic all the time and feel like jelly - core is very weak, can hardly plank for 15 seconds - still underweight - still have brisk reflexes - doctors still dismissive
  3. M

    Some updates

    Previous thread It seems my previous thread was closed, if you could, please merge this with it. I wanted to provide some updates on my dx process. I got an MRI of multiple parts of the spine, which all came back clean, and my neurologist said MS was no longer on the table. When I went back...
  4. M

    Do you have any answers to what you're going through?

    Do you have any answers to what you're going through?
  5. M

    Not yet, just got cleared for MS

    Not yet, just got cleared for MS
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  6. M

    JALS worries, is it worth pushing for an EMG

    After messaging my neurologist a bit, it's my general impression that he doesn't care to explore other possibilities until after the MRI. He told me that his suspicions are MS or some spine pinched nerve. Neither of these possibilities really make much sense to me given my symptoms and prior...
  7. M

    JALS worries, is it worth pushing for an EMG

    How quickly would that disability be? Also how common is this most common form? The spine MRI is far out due to scheduling issues and insurance. I don't really understand what good a spine MRI does if I'm having symptoms in my face though. Again, appreciate the time.
  8. M

    JALS worries, is it worth pushing for an EMG

    I've avoided making a thread here for a while but things keep happening that exacerbate my worries. I've read the sticky. First of all I appreciate all of the time any of you take to respond to this thread. You are all doing God's work dealing with so many heavily anxious people for nothing in...
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