Recent content by lifelover

And I should see ENT (knk) doctor too. I am having a constant mucus in my throat, and it is really hard if not impossible to get out with coughing and huffing.

Moi! I have no diagnosis. I hope it stays this way. My twitching is getting lesser everyday, and I am still 100% fully functional. Still, I know that _something_ isnt right. I need to start to believe that it is not ALS because it 2 years exactly now from the start of the symptoms. What are your...

Hi! Things are same as they were. Only thing that has came into play is that my nose is running 24/7, for the last 6 weeks. But on the other hand, couple weeks ago I did 7 muscle-ups in a row. So even my triceps, biceps, and the "wing" muscles of back have been twitching like crazy for a year...

No I didnt get bulbar-emg. I might could get it on the very end of the year. Finnish healthcare is just busy right now that unless you are dying, you need to wait almost a year to get an appt. paid by taxmoney. And Ive already spent around 4k€'s visiting private doctors.

But my lumbar puncture didnt point towards ms or anything else either. Idk. Really hard situation. I dont have the energy to go to work really, but I just do go. I try to life my life to fullest. Gym, fixing my old snowmobile, play with my kids, play PS5, hang out with friends etc.

Hi! Alive. Fasciculations are ended in my toes left foot, and nowadays toes are catching everything on the floor. Balance is poor. Speech is good for others, but worsening. Idk i start to believe no als, but something for sure. I had t2 lesions in mri suggestive of ms.

At the same moment when my jaw might snap shut, my hands or my fingers have little "dystonia". My thumb can bend to weird position, my hand can "jerk" (yeah, funny), my eyes can squint involuntarily. It is really weird, I am still awake but really close to falling asleep. Still so awake, that I...

One night I had tossed my pillow to floor and grabbed my pretty heavy bedside table into my bed, and slept next to it and my wife found me in the morning sleeping with it. She also tells me I am making loud noises, like groaning, munching and sounding aggressive. I also BIT her couple of weeks...

Not that I know. They only exist while I am falling asleep, so I am not sure what induces those. I cant start sleeping on my back nowadays, then they will most likely happen. But also happens when laying on my side. I am also acting wierd during my sleep. /2

Hi! Jaw jerk not tested. Idk if it is jaw clonus or what it is, but I experience involuntary jaw shuts at night, and short jaw tremors also at night

Yeah. Frustraring it is. Let us know if you have any answers in the future. I will do that too. I think my next appointment should be within 2 months. We have long waiting in Finnish healthcare system right now.

Hi! How are you doing? I am still "100% functional".Laying down in my couch rn and thinking that why the f I just cant swallow my saliva like I used to. It feels that as I swallow, 10% of saliva goes up to my nose, and other 10% stays somewhere close to my airways. Also my left ear is "muffled"...

Whatever you have, I have. The symptoms are so unbelievably similar. For me my speech symtomps fluctuate pretty much. Sometimes it is hard for me to say words with "ng", for example "long". It feels like my soft palate is not doing its job and the "ng" is sounding really nasal, like for real...