Recent content by JWAN

So today the Doctor from Cleveland clinic called to tell us that while they have ruled out several different possibilities of what is causing my husband's chronic denervation atrophy, they can not give us a difinitive diagnosis at this time. They can only say that it is not a myopathy or a...

He has fallen several times and probably more times than he actually tells me.

Also, my husband has been biting his tongue quite a bit lately, sometimes several times in one day but I do not see any fasciculation. At night I do notice his speech is much slower although not necessarily slurred. Did that happen to anyone else out there?

Hi everyone! It's me again....I don't mean to be a pest, but we FINALLY got the results from my husbands muscle biopsy and I am more confused now than ever by what the Doctors wrote. They were originally leaning towards a Myopathy but then a second emg that showed signs of denervation actually...

Re: Got my emg result. Please help me to understand Hi everyone! I hate to bother you with this, but we just heard back from the Cleveland Clinic regarding my husbands second EMG and I am having a hard time understanding what it means. Does anyone out there have any idea what the nurse meant...

I posted the source, but I got a message saying my posts won't be visible until a moderator okays it.

Sorry, I haven't learned how to edit a post yet... here is the source I got that one from. But there was a pamphlet from the Cleveland Clinic where I took my husband two weeks ago that lists the sensation of heaviness as an initial complaint as well. That's why I questioned it yesterday too...

I don't know, maybe I'm just confusing ALS with other MND's their symptoms. But here is an example I found of where it is stated that some patients complain of a heaviness in their limbs. I know that is one of my husband's complaint. Motor neurone disease (MND) is mostly a sporadic disease of...

Pardon me, but I can't help but feel that your response is a just a little off. Please believe me when I say that I'm not trying to start an argument here, but I think it's wrong to tell someone that "any feelings" point away from ALS. Especially feelings of heaviness. I think after lurking...

Thanks so very much for you time and consideration everyone, I truly appreciate it. Nikki, I have been leaning that way myself. but nothing in his blood work so far indicates any muscle disease I have been able to find and read about. We are hoping the biopsy will lean that way too. You guys...

I'm just trying so hard to understand how a muscle just fails...it seems like it would have to have something going on with it before and during. Is that discomfort? Is that a growing weaker thing? Is it just different for everyone?

So then, if my husband had to use both hands to brush his teeth would that be considered failing? Or on-going weakness? What about driving? Did anyone have a hard time using their hands that it made driving uncomfortable, almost unbearable?

My husband's first EMG was clean

How about blood work? Is it safe to say that the blood work for a person with ALS usually comes back normal. That there is nothing in the blood that identifies ALS? that the blood work is used to rule out other diseases? Or did any of you who have been diagnosed have any issues with blood work?

The emg was on one side of the body, from his foot all the way up to his neck, then to the back and the buttock.