Recent content by heatherlev

Thanks! Thanks for your help

Hi all, I am going to go help take care of my brother, who has ALS (doesn't have a vent or PEG, but uses a wheelchair and BiPAP and needs help with a lot of things) for 10 days while my parents are traveling. I might be a bit paranoid, but I was wondering if there's anything I need to know...

thank you thank you so much for your reply. Much appreciated.

Hi all, and happy holidays. My 35 year old brother lives in Michigan (USA) with my parents (ages 68 and 64). He can still eat, talk, and breathe, but uses a Bipap at night and uses a wheelchair, and needs assistance with many activities. His oxygen level was recently tested and was at 88%...

thanks so much Thank you all so much... these links are absolutely terrific! I think this will really help my brother make an informed choice. Really, the thing I'm not sure of is whether he is even ready to deal with the realities he might be facing.... he gets very upset when confronted...

My brother was diagnosed with ALS a few months ago. He can still talk, breathe and swallow fine, but otherwise is totally disabled (can't stand up, uses a wheelchair, etc.). He is thinking about whether he would want to use a respirator & feeding tube when he needs them, or not. He is mainly...

Hi there, My brother was just recently diagnosed with ALS. He also has a spinal cord injury, so has been disabled for a long time now, and it's possible the symptoms were masked by his other medical problems. He has listed me as his healthcare proxy... originally, in his previous living...