Recent content by GaryLee53

It is confirmed that I have ALS, they put me on Riluzole

It is confirmed that I have ALS.

The symptoms point at ALS, twitching, speech, swallowing and walking is a little slow. They completed the tests this week so I'm waiting for the results. Although pretty much sure it is ALS.:roll:

I'm hoping to get BrainStorm NurOwn stem cells. BrainStorm is hoping to get the policy in early June. So I still can play my guitar, play my drums, do yard work and ride my scooter. I can't talk to well. But I'm hoping to get NurOwn.

I'm seeing Dr. Walk too. They running me through tests to see if I have ALS. I had other things show up on my MRI, so they are seeing if they have anything to do with my symptoms. I'm crossing my fingers.

I just had an MRI to see if my pituitary tumor has shrunk. Very uncomfortable on back with the build-up of saliva and trying to swallow. Does anyone know if they can do an MRI on your laying on your side or stomach?

Oliver with PKU is very rare. He has to be very careful with protein. Years ago PKU would end up with severe retardation, would end up in state hospital. He has to be on special foods. So I can deal with this ALS. I've lived a good long life and I just have to keep moving forward. Time to...

A little about my progression. Around Christmas 2017 people started noticing my speech had slowed. So on Feb. 1st I went to the Doc to see if I might have had a stroke. (I had a mild heart attack at 49, two stents) now I'm 65. Back to the story, that's when they found the Tumor on my...

Glad to see you are still playing, I'm still playing my guitar and drums. Gary

Thanks Karen, I will do what I can as long as I can. Best of luck and good to meet you. Gary

Thanks I'll check Jason Becker's web site, and thank you so much for the tips. I still take my dogs for a walk and swim at the gym, play my guitar and drums every day. Hopefully I can hit the golf course with my son this summer.

Thanks for the info I will take that to University of Minnesota for my Appt.

Want to know what things I can do to slow progression. I play drums and guitar, the ALS so far hasn't affected that. But I noticed slurred speech around Christmas 2017. Thought that it might of been a stroke, went to the doctor all they found Prolactenoma Tumor on my pituitary.